Thinking of you this week as you are strong for your tiny girl. that the drs and nurses caring for her are able to give her the very best of themselves and the treatment available so that she can fight the challenges that are before her. I hope you have some good news to cling to soon.
Oh honey I have been thinking about your little girl over the weekend, noticed you hadn't been posting and wishing that everything was OK. It sounds like a harrowing week for all of you but there is some good news there - she had a pretty settled weekend, she is showing she is still your little fighter, and hopefully she is over the worst with the NEC. All you can do is what you are doing, take it one day, one hour at a time as you need to. You are doing really well and if you need to curl up in a ball and cry then go for it. All of us here are in your little girl's corner cheering our hearts out for her to make a full recovery and be home with you soon.
Oh sweetheart my heart is in my mouth with every post I read. It is such an awful rollercoaster. If you ever need to talk to someone who has been in a similar situation pm me and I will phone you.
My prayers and positivity are being sent to you every day.
oh infinity that sounds like such a massive week and 45 days of hour to hour is long and i can only begin to imagine how tough so big big to you all xx
sending Heidi all our strength and hope and love for a speedy recovery and onward journey to home xx
Heidi had another bleed on her lung overnight. So we almost go through the weekend with no hiccups, but in the end it was not to be. I talked to the surgeon this morning and they are concerned enough about the blockage in her bowel that we're starting to plan for a scenario if surgery becomes necessary. She had some gastric dye administered this morning and they'll x-ray her at 12 midnight and 12noon tomorrow to see where things are being held up and hopefully shed some more light on what we're dealing with.
Inanna thank you for the offer to chat, I may well take you up on that one of these days. Right now I'm strugging to string more than a sentence together in real life, so I'll definitely PM you when I feel more able. Coming in here at least allows me to blurt things out without any pressure or feeling like I have to answer a barrage of questions. You would think nosy family memebrs would understand that I don't want to regurgitate every last detail and would stop pounding us with questions but apparently not. I know they care, I'm just having trouble staying sane right now.
Oh Infinity, I just read your previous post about Miss H being more settled and relaxed and just saw your most recent post about the bleed on Heidi's lung.
I have a lump in my throat reading each update on the ups and downs you and the family are going through, in addition to what Heidi is going through. I hope the x-ray's shed a bit of light on what is going on. She is such a fighter and I pray daily for her.
I will light that candle again for Heidi this evening in the hope it will 'bring some light' to the Doctors treating your little princess and provide a course of action to get Miss Heidi home.
I can imagine the dark tunnel you are facing at the moment, and I wish there was something I could do to brighten it for you, unfortunately only time may do this. Please do let me know if there is anything I can do. PLEASE!
Keep fighting little Heidi, get better so you can get some Mumma cuddles really soon!
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that the drs and nurses caring for her are able to give her the very best of themselves and the treatment available so that she can fight the challenges that are before her. I hope you have some good news to cling to soon.
to you, hun. This is such a marathon for you too.
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