my friend mentioned the same thing when her son was moved out of NICU and into SCN. she said it was a bit nerve-racking for a couple of days to see him in a new, and less vulnerable light ITMS. but one step closer to home
Infinity that is wonderful (albeit a little scary for you) news!!! I've been reading but not posting as much as I'd like. I really want to send my love and thoughts and I hope you are getting the sleep and support you need IRL. Way to go Heidi you are a fighter with a wonderful family.
Such wonderful news for you all infinity... when we transferred from a level 5 SCN/NICu (DD was in the SCN section) to the Level 3 SCN hospital... I drove myself slightly batty with the change. It is a huge step and please know that we are here to support as we can xoxox
What wonderful news A huge congratulations to little Heidi.
SCN is definitely a different experience and takes a while to get use to but you are doing a wonderful job. It takes a lot of strength the travel the NICU journey and that is why Heidi has chosen you!
Oh, wow, WOO HOO!!!!!
I don't get on belly belly for a few days & miss this AWESOME news!!!!!!!!!!!!
Well done Miss Heidi! I would assume it is pretty daunting to get a SCN 'promotion' after weeks in NICU, with DS1 we only ever 'dropped' to High Dependency as he caught a contagious bug a the day before they were transferring him to a lower level hospital, so had to stay in his isolette in HD until he went home from the Mercy He still doesn't like change..... DS2 was only ever in SCN.... Different journey though!
Seconding Sally's wish for a smooth journey all the way home.......
DD is still going really well in SCN. She's up to 2270 grams now which is great. They're still fiddling with her feeds to ensure she's digesting things properly. After a few days of very watery output they've switched her to a different elemental formula to hopefully make a difference which it has. Things are looking much better now and they're slowly grading her up to 3 hourly feeds. I am still able to breastfeed her, she just needs to have the bulk of her nutrition through the formula for the time being until her gut settles and her liver kicks in again properly, then we'll re-introduce EBM. Its frustrating for me, especially seeing I have an overflowing stock on the freezer but she needs to grow & absorb every bit she can and she can't do that effectively until her liver gets better. I just need to be patient.
I am planning on sitting down with one of the consultant doctors early next week to discuss my breastfeeding goals...I've not been shy about my committment to her having EBM and I will be asking them to work with me to achieve my aim of taking her home breastfeeding successfully. Of course with top-ups if necessary, but I really feel the need to be clear with them & remind them again. So wish me luck with that one. We manage one or two breastfeeds each day and she's a champ! Latches on nicely and just gets going, its beautiful. I am so so proud of her.
And I'm getting a bit more practice at changing her stoma dressings and bags too, with the help of the lovely stoma nurses at the hospital. They've been great. They love coming to see DD - they tell me they deal with grumpy old people most of the time so helping DD is a nice change.
I've finally got to a place in myself where I've felt comfortable buying some new things for her, little teeny tiny clothes....so precious. And of course I've got all boys stuff at home so looking for girls things is lots of fun
We are unbelieveably tired and still have a long road to go but finally, finally we can see a light at the end of the tunnel, and it gets a bit stronger every day.
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A huge congratulations to little Heidi.
and takes a while to get use to but you are doing a wonderful job. It takes a lot of strength the travel the NICU journey and that is why Heidi has chosen you!
He still doesn't like change.....
but she needs to grow & absorb every bit she can and she can't do that effectively until her liver gets better. I just need to be patient.
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