DD is still going really well in SCN. She's up to 2270 grams now which is great. They're still fiddling with her feeds to ensure she's digesting things properly. After a few days of very watery output they've switched her to a different elemental formula to hopefully make a difference which it has. Things are looking much better now and they're slowly grading her up to 3 hourly feeds. I am still able to breastfeed her, she just needs to have the bulk of her nutrition through the formula for the time being until her gut settles and her liver kicks in again properly, then we'll re-introduce EBM. Its frustrating for me, especially seeing I have an overflowing stock on the freezer but she needs to grow & absorb every bit she can and she can't do that effectively until her liver gets better. I just need to be patient.

I am planning on sitting down with one of the consultant doctors early next week to discuss my breastfeeding goals...I've not been shy about my committment to her having EBM and I will be asking them to work with me to achieve my aim of taking her home breastfeeding successfully. Of course with top-ups if necessary, but I really feel the need to be clear with them & remind them again. So wish me luck with that one. We manage one or two breastfeeds each day and she's a champ! Latches on nicely and just gets going, its beautiful. I am so so proud of her.

And I'm getting a bit more practice at changing her stoma dressings and bags too, with the help of the lovely stoma nurses at the hospital. They've been great. They love coming to see DD - they tell me they deal with grumpy old people most of the time so helping DD is a nice change.

I've finally got to a place in myself where I've felt comfortable buying some new things for her, little teeny tiny clothes....so precious. And of course I've got all boys stuff at home so looking for girls things is lots of fun

We are unbelieveably tired and still have a long road to go but finally, finally we can see a light at the end of the tunnel, and it gets a bit stronger every day.

Night all xx