We are unbelieveably tired and still have a long road to go but finally, finally we can see a light at the end of the tunnel, and it gets a bit stronger every day.
I am so so happy that you are all finally being able to see the light that becons to take your amazing precious little girl home how ever far away it is we are here for you every step of the way and I know there will be a lot of tears shed that day xxoo

I am glad that you ahve all settled into the SCN routine, it can be such a big change from NICU. I hope that her liver improves and the amount of EBM can be increased over time, I am so glad you are able to still BF her, and it is fabulous to hear that you are putting your foot down and really pushing them so that you will be able to take home a BF'd little girl, it is a hard work with the top ups, expressing and BF'ing at home, but it is so very rewarding

Wooo Hooo for doing getting some retail therapy in, the teeny tiny clothes are pretty amazing especially when you hang them on the clothes line! DD came home at 2190grams and I had only bought 000 and a friend had given us one 0000, which I hadn't washed as I didn't think we would need it, in the end Dh along with our family and friends bought her clothes (which were a lot harder to find even just a couple of years ago) and the 00000 were too big on her, we used the PP teddy bear clothes, but they have a new Tiny Premmie range now which is just gorgeous!

Take care and thinking of you all xxoo