What do you remember fron N.I.C.U

[Janie]

Girls, I'm so sorry that you have endured such horrible care, at such a sensitive time . It seems so foreign to me, as the staff and facilities at our SCN were so wonderful. I hope you all feel able at some point to constructively complain, as that is how things get changed (hopefully). Again, I'm so sorry, I feel terrible for all of you

[Early Kids]

Girls, I'm so sorry that you have endured such horrible care, at such a sensitive time . It seems so foreign to me, as the staff and facilities at our SCN were so wonderful. I hope you all feel able at some point to constructively complain, as that is how things get changed (hopefully). Again, I'm so sorry, I feel terrible for all of you

I was going to reply with a similar thing. I cannot fault the care both mine received in KEMH Perth. I only had a run-in with one nurse who continued to try and take blood despite the fact she hadn't given enough surcrose, but she was only a trainee. I was only ever asked to leave twice... once when the trainee took blood and a second time when a lil one grew wings I was there for every single Dr's round fighting for them and making sure they got the best, I know in my heart that it was me who got them home sooner. Brendan they wanted to keep in until after the Easter long weekend I fought and fought and with some tears I managed to persuade the Dr to let him go on the Saturday, only because my mum was going to be with us for a few days. With Tristan his only issue after day 3 was Jaundice, it took a LOT to persuade them to transfer him to my local hospital and then it was easy to manipulate the local Dr here He was home on day 9 and discharged completely day 11. I was getting really ****ty with them actually... it's jaundice! lol

[DaintreeDream]

... I know in my heart that it was me who got them home sooner. Brendan they wanted to keep in until after the Easter long weekend I fought and fought and with some tears I managed to persuade the Dr...

This was the same for me, they wanted to keep Matilda in longer to do tests that I could easily do as an out patient, I fought to have her home on the Monday (after 11 weeks in NICU/SCN) but they wanted to wait until at least Thursday, they then tried to say that I couldn't take her home until I did a resusitation course lead by their peads, I had alreay asked many time what I needed to bring her home, this had never been mentioned. So on the Monday the leading pead was called and he kindly gave up his day off to come and go through it with us so we could take our precious girl home. Annabelle is a different story, they say they will not allow heartkids to go home on a NGT they have to be on full oral feeds, I fought so hard (as Matilda is still fed via NGT so I have ALOT of experience), they wanted to transfer her back to MMC and I knew once she got there it would take forever to get her out again so I begged and stated my case and at 16 days old she was released into my care with hopsital in the home visits daily, I thank the heart surgeon everyday for letting us come home as it took 6 weeks to be fully BF and therefore remove the NGT, this is when she technically should have been released, 4 weeks later.