Scared & SOoooo Confused!!!

**OceanPrincess** · November 27th, 2008, 08:16 AM

Thanks very much for your kind words, WBM

It is very touching that even in your difficult period you can be kind to other people.

Keep hoping. Miracles happen.

**blueiris** · November 27th, 2008, 09:54 AM

WBM ~ Just want to send you big hugs & lots of positive thoughts that your baby will be ok. I can't even begin to imagine just how hard this is on both you & your DH. I hope the next 2 weeks just flies by so quickly for you both.

Thinking of you both,keep positive hun

OP ~ Thinking of you too hun.

**WannaBMum** · December 2nd, 2008, 07:07 PM

Hi All,
Just thought I'd update... tomorrow afternoon I have my Ob appointment and althought I don't have my ultrasound for another week I''m hoping that she may able to shead a bit of light for us. It's been two weeks since we were given our bad news but haven't seen anyone since so I'm really anxious to go to my appointment. My ob will do an ultrasound but its a one of the old machines where its really just used to check babys heartbeat, i don't think its able to show a really defined pic.
Well anyways I'll update again as soon as I know anything more.
Thanks everyone xxx

**Liviam** · December 2nd, 2008, 07:14 PM

I'll be thinking of you tomorrow

**Meluchja** · December 2nd, 2008, 08:53 PM

Good luck, I hope your ob can give you some more hope, let us know how you go. Remember we are here for you, take care x

**Arcadia** · December 3rd, 2008, 07:32 AM

Thinking of you...

**WannaBMum** · December 4th, 2008, 06:32 AM

Hi All,
Well I finally got to my ob appointment yesterday and I was so nervous walking ing although I knew that it was not the day the i was going to find anything out really.
As soon as I walked in she said the DH and I that she was really sorry to her the out come of our last ultrrasound and said that all she could really do is explain a few different things and give me another ultrasound in her room, but as she only has one of the small, old machines it wouldn't be detailed and tell us anything besides if babys heart is still beating and also she wanted to measure the fluid around baby.
So we were talking for what seemed like ages and i think probably was about 30-40 mins. she just explained that next Wednesday when I have the big ultrasound I will be told there and then exactly what they find as a ob will be doing it.
If it still looks as though the babys legs aren't in the postion or the size they should be for a 15wk bub and she can't see any noticable cause for the problem they will do an amnio while I'm there.
The one and only reason they will not do an amnio is if they find the baby has spina binfida (spelling?)
if thats the case they will advise a termination to be done asap. (but also did say that it is definately our decision which was we go).

If the amnio is done is will take 12 days before we get a result (which falls exactly on 22nd dec - my beautiful son's 2nd birthday).
Once we get the results it will decide what happens next, if its a chromosonal problem, some sort of syndrome that is well know about or worse case something dr's haven't seen or heard of before.

Dr also went through what will happen if its not a major disability that when I'm closer to delivering bub they will send us down to the Childrens Hospital and see a heap of specialist to explain to us the different procedures and operations that baby will be having.

On the other hand the Ob explained that there may be organ failure or damaged depending on how high up that baby has abnormalities from.
She also went through the whole procedure of what will happen in a termination needs to be done and I couldn't and still can't believe it..... she went into a lot of detail and I ended up a complete mess and although I'm glad she went through it I'm a bit shocked and can't beleive there is so many poor women that go through it so often.....

Anyways off that topic as I don't want to get upset... need to stay positive.

We had the ultrasound (small one) done as she explained, and babys heart was beating away :-)
Fluid around bubs was all good, and surprisingly to all of us the baby did a few big kicks ---- YAY, that was the best thing cause at the 12wks scan when they found the probs they said that bubs wasnt kicking and that was more then likely because it couldn't use its legs.
So that was a bit of light for us, although the ob did say that she could see that the legs were curled up and looked to be small for bubs age and compared to the length of its arms.
But once again kept saying that she couldn't measure or get a clear pic cause of her machine.

So we left the appointment pretty much just saying that she'll be in contact will me next week after the big scan to discuss what the outcome is....

Only 6 more sleeps to go!

Thanks everyone
:-)

**~Trish~** · December 4th, 2008, 06:58 AM

I'm so sorry you are going through such a stressful time. There is so much for you to think about and process. I hope the scan and amnio go well and you get positive results. My thoughts and prayers are with you

.

**Liviam** · December 4th, 2008, 07:02 AM

WBM I've read and re-read your post. I'm having trouble finding the right words so I'm just going to send you a huge

and keep

that everything will work out for you and DH.

**Arcadia** · December 5th, 2008, 07:31 PM

Hi WBM...not too long to go now. Sending you lots of hugs and positive vibes...

**Catastrophic** · December 7th, 2008, 06:27 AM

Hi WBM, I just read through this thread and it brought tears to my eyes, I'm so sorry that you have to go through this, I just want to send you a lot of positive vibes and heaps of hugs to get you throught this tough time... Take care...

**HotI** · December 7th, 2008, 06:53 AM

Hi All,

If the amnio is done is will take 12 days before we get a result (which falls exactly on 22nd dec - my beautiful son's 2nd birthday).
Once we get the results it will decide what happens next, if its a chromosonal problem, some sort of syndrome that is well know about or worse case something dr's haven't seen or heard of before.

Hi WBM

If you have an amnio, you can ask for a FISH test that will give you some results within 2 days. The FISH test uses markers on certain chromosomes (13, 18, 21, X and Y). Usually, there are 2 chromosomes of each number and either XX for girl or XY for a boy. If they see 3 markers for one of the chromosomes, this can indicate a possible variation.

They will still do the rest of the testing to confirm any results from the FISH, and the longer testing also looks at other chromosomes.

With amnio, you can find out the sex of your baby. If you dont want to know, you dont have to get this information.

If you are having any trouble getting info from your doctors, or understanding it, or just want someone to talk through your options with, you can request to see a genetic counsellor. They can help even if a genetic condition is not diagnosed.

take care,

kate

**Joeve** · December 7th, 2008, 07:43 AM

Stay strong and I am sending you positive vibes for your next ultrasound

**Visitor8** · December 7th, 2008, 09:09 AM

Just wanted to give you a super dooper big hugemonous hug and say I hope everything goes ok at your scan.

Life only throws us that which we can handle.

**WannaBMum** · December 9th, 2008, 07:08 PM

Hi All,

Well tomorrow is the big day, when hopefully we will be informed of exactly whats happening with our little bubba - although it still feels like a horrible dream and i have such a bad feeling about tomorrow.... but I guess there's nothing I can do at the moment besides sit and wait for 1.30pm tomorrow.
My wonderful husband and my mum will both be in there with me so with 3 sets of ears hopefully we can take it in correctly...
I will be back on here to update as soon as I can.
Thanks all xxx