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Thread: Dealing with bad news

  1. #37

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    Quote Originally Posted by Rommy'sMummy View Post
    Sezza, we were spoken to about that as well. Rommy had a two vessel umbilical cord (one artery) as well, and the growth restriction, and a very small and deteriorating placenta. He also had reversal of flow along the umbilical cord which really affected his growth later in the pregnancy - even with the pre-term labour we made it to 36 weeks!

    We had an amnio with Rom as well but of course didnt test for the chrom issue that the cardiologist were worried about as we didnt find out about his heart until 20 weeks. Had to wait until birth to see if it was there. From memory there was a stronger correlation between boys-heart-chromosomes issues than for girls-heart-chromosomes.

    Roman is fine chromosomally and has no brain impairment at all. He is bright and learning well now.
    Thankyou. You cant possibly understand how much it helps knowing that you have been through a similar thing (probably even worse), and that your little boy is doing so well. The reversal of flow along the umbilical cord, brain sparing and worsing of the growth restriction are the major things they are watching out for with bubs. Aparently thats the next step from where we are at the moment, but fingers crossed that things will just continue to be stable and we make it to 36 weeks too.


  2. #38

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    Update on us. The news unfortunately is not good.
    Our baby's growth has taken a turn for the worst and the Doctors are now fairly confident she has a form of dwarfism and not intrauterine growth deficiency as intially thought.
    We are going for an appointment with several specialists in a week and a half to determine how bad the dwarfism is, if there are other systems involved and if they can shed any light on the suspected heart condition (coartation of the aorta).
    We have been told that we still have the option to terminate until 28 weeks in Victoria. At the moment the news is still very upsetting and we are unsure of what decision we will make.

    We just don't want to see our baby girl suffer.

  3. #39

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    Sezza - I'm so sorry - my heart breaks for you and your DH.

  4. #40

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    oh Sezza. I am so sorry. I am praying and hoping for better news for you at your next meeting with the specialists.

    My heart goes out to you...

    Rachel

  5. #41

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    Sezza I am praying things aren't as bad as they seem

  6. #42

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    My DD #2 was a IUGR bub and my placenta had pretty much shut down- we ended up being induced at 37 weeks (IUGR wasnt picked up till 34 weeks when i asked for an u/s as i didnt feel my belly was getting bigger) I wasnt worried about it other than i thought i should be bigger - i was having a heap of kicking from her and knew in my gut that she was fine!

    SHe didnt have heart prob though but i just wanted to say that while my bub was born weighing only just 2kg- within a week she had put on 500g and in fact my body came through with MILK - not colostrum within 12 hours, it knew we had to fatten her up.

    TOday - 2 years later- she is a monster- off the charts for height and nice and chubby- even weighs more than her big sis whos 18mths older!

    Good luck and keep strong!

  7. #43

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    so sorry sweetheart

    am thinking and praying for you , your dh and your little girl

    please take care

  8. #44

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    Sezza, I'm so sorry to hear the update.

    Wishing you and your DH and your little girl all the best. THinking and praying for you.

  9. #45

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    Have just spent the time reading all your posts;
    Im so sorry for all that you are going through. It must be so much to deal with and then to have the added option of a termination. Of course you dont want your baby to suffer.

    Sending you all the strength to make the right decision for your family!

  10. #46

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    Update on us.

    Went to see the specialists on Monday and finally some very very good news. Bubs had a major growth spurt that the doctors were not expecting. They still did all the tests for dwarfism, which all came back fine. So now we are back to they don't really know whats going on. But they are fairly confident she doesnt have dwarfism and that her condition isnt fatal.

    The options now consist of either IUGR (lol... back there again) or a rare genetic "syndrome", which according to the genetist could range from quite severe to virtually unnoticeable (basically she doesnt know either and is taking a bet each way)

    They also took another look at her heart and although she still has a coarctation of the aorta, they were unable to see any other problems with her heart. Which means one surgery soon after birth and all should be well.

    The blood flow to placenta and to the baby also looked quite good, so they have changed their minds about having to induce early and are now talking about me making it to term and going into labour naturally.

    And last but not least they were all so happy with the results that I have been dropped down to ultrasounds every 3-4 weeks rather than weekly.

    Given the news we were expecting to hear, my husband and I are over the moon. I feel like I can finally relax for the first time in months and start really preparing for the baby that will be here sooner than I think.

  11. #47

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    That is the most wonderful news. I can't imagine what the last few weeks have been like. I am so happy and relieved for you. I hope it's all smooth sailing from here and that you & DH finally are able to enjoy the pregnancy and preparations.

  12. #48

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    thats AWESOME news sweetheart, i am so so so very happy for you and your dh. hope you can sit back and enjoy the rest of your pregnancy.
    take care xxx

  13. #49

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    What wonderful news! Enjoy your pregnancy Sezza and best of luck!!

  14. #50

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    that is fantastic news i have had 2 babys with IUGR one was worse then the other the first one we nearly lost him as no one knew i had it so at least they can moniter you and watch how the blood flows and how the baby is growing but good luck with all of it

  15. #51

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    Sezza- I have been reading up on what you have been and are going thru with your pgcy. I am sorry you have had a hard time of it, and I am praying that your little girl shows the Dr's just how perfect she really is.
    I had a hard time of it last yr with my pgcy and was so stressed out the whole way thru. It didnt seem to let up at all. Once I had my little V the stress still kept coming, even tho my beautiful little V is doing everything she is supposed to, it was more the Dr's trying to say there is something wrong with her. They have done u/s's on her for her kidneys, heart once she was born and she is fine apart from a small echogenic focus on her heart that I was told is just like a freckle on your face but it is on her heart. It isnt affecting the functioning of her heart whatsoever. So really all is fine. They did chromosome testing while I was pgnt with her, and did karyotypes on her once she was born, and even went to the extent of checking my oldest DS who by the way is perfectly fine, as he has similar features to V and all came back fine. They have been trying to find something wrong, and I keep telling them she is fine. V when she was born came out with a V mark on her forehead, this is her V for Victory mark, she was born little 2.38kg and I am hoping when she gets weighed by the pead in the next month that she will be over 5kgs at 7mths.
    She is the most happy baby, always full of smiles. I am just so inlove with her.

    I hope your little one comes out with her V for victory mark too, just to show these DR's that she is a fighter and is just perfect, healthy, just like my V.

    I hope the rest of your pgcy is the time for you to enjoy your pgcy and you are able to look forward to your beautiful little baby girl's arrival.

    Lots of hugs.

  16. #52

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    What fantastic news, I hope you can now enjoy the rest of your pregnancy

  17. #53

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    Sezza, I have been thinking about you lots and am so happy for you! What joyous news!

  18. #54

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    I have just read through all your post's i am so happy for you and glad that you little princess is doing well now. She sounds like a real fighter. Thinking of you and your famiy:-)

    Nikki

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