We have also been told its' not hereditary & that it is less common in males. That most wopmen don't knoew they have it until child bearing age!
My friend has days where she cannot move & was warned that the stress of preg & labour would not help her, but so far she isa doing well.
Mind you her diet totally consists of Peanut butter toast, Mud cake & pineapple soft drink!!!! She does no exercise at all, so I guess if she desn't try to help herself & keep her working muscles moving then she really has noone else to blame.

My Dad was diagnosed about 8 yrs ago & has gone from a leg cramp to walking very, very slowly & only about 10 steps at a time with a walking stick...

But he also did not exercise when he still could!

I hope all goes well for you & I am sure the Dr's have told you pretty much everything!!!