Hello everyone, thanks so very much for allt he kind words. You've all really made me feel heaps better.

Charlotte91 - I seem to have forgotten to change my profile.... I used to live in the mallee in SA but am now in Perth
LionsandBears - I had to google ventriculomegaly but I think that might be what my little one has. And yes, I am in the public system.

Hopefully I get more results and some direction from the hospital tomorrow. If I don't then maybe I'll just get a bit hard ass on them