Hi to you both (augustmoon and boychuck),

My little cousin was born with this 12 years ago. He was half of a set of IVF twins, his brother didn't have it. I think he had 3 operations in total, one or two of them were to insert ballons to stretch his skin in advance of them putting it all where it belonged.

I think he was nearly 3 months old when he came home from hospital for good, i think the average is less nowadays though and he had a few problems with infection after one of the operations, which delayed the next one iykwim. At 9 months he was a little behind his brother still but by 12 months they were developmentally identical. He's fine now, neerly a teenager! Not sure how relevant this is really - it was ages ago, i'm sure a lot has changed since then.

Best of luck for you both and your beautiful bubs.