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thread: Mirena - Madness or Myth? Class Action started??? TMI for some...

  1. #1
    Registered User

    Jul 2008
    106

    Mirena - Madness or Myth? Class Action started??? TMI for some...

    Well, I am a little bit of a pickle and not sure what to think about Mirena now after a few websites...

    I had my mirena inserted in September, and so far been going good. Bleeding alot more than what they told me, but have been reassured it will settle down. Then a fortnight ago I started getting severe pains in my right lower abdomen shooting down into my right leg - 6-7 times a day. Enough to make me stop and GASP...

    Anyways, there was a few other things that didn't seem right, so I rang the clinic. I was told it was normal and that I should see how I go, if it still happens over a week to call them. Now the pain is still there, but only 3-4 times a day, but still as painful. I have been 'spot' bleeding every 3-4 days, not even for a full day, bright blood.
    When I rang the clinic today and explained, and that I thought I was about 15 days overdue for a period, she told me abruptly that I wouldn't get them anymore and not to worry. When I asked why I was in pain, she told me that it was normal... ???
    She reluctantly booked me an appointment next Tuesday.

    So I started googling and someone on here gave me a website to go see - CureZone. And then I started looking at other sites too... And it started to scare me... I know that the majority of people are ok on Mirena, but a 20% rate of bad side effects? And over 50% taking it out in the first 3 years?

    Here are some of the other severe side effects (ones with tick are the ones I get too)
    CHRONIC fatigue v
    CONSTANT bleeding (up to 9 months)
    Heavy bleeding and clotting v
    SEVERE Lower abdominal pain (cramps) v
    SEVERE joint and pelvic pain
    SEVERE Acne or other skin problems v
    DEBILITATING Back pain
    SEVERE bloating v
    SEVERE weight gain v
    SEVERE Headache v
    SEVERE Mood changes and wood swings v
    Constant Nausea
    Loss of hair v
    Vaginal Dryness v
    SEVERE depression and feeling of hopelessness v
    Decreased Libido
    Increased body hair v
    Dry skin v
    Incontinence and constipation v
    Many many more

    I have identified that since it went in, I have started going BONKERS. I actually had to start taking Antidepressants because of my moods - I am sooooo sad, and moody, and really really snappy at EVERYONE. I have severe acne now - I never have pimples, not even when I was a teenager...

    And so many other symptoms.

    So sufferers are organising a Class Action in America, and now the UK too against the company. I want to find out what is wrong with me, the pain in my body, but I am freaking out now too that it is really stuffing up my body - anyone the same??????
    I am also really scared they will talk me out of removing it at the clinic...
    Opinions PLEASE!

  2. #2
    Registered User

    Jul 2008
    106

    I forgot to say that since it was inserted, I have put on 8 kilos. Also I am so bloated my mum asked me the other day if I was expecting!! And yes, I do exercise, every morning I walk 2 kms and eat healthy because I am a coeliac - so no junk for me!

  3. #3
    Registered User

    Aug 2006
    The land of chaos
    663

    Oh poor you. Sounds like you are having a really awful time at the moment.

    Gee that is worrying about the class action.

    I dont mean to scare you but my sil had a mirena and started having bad abdominal pains and she went to the dr and they did a scan and the mirena had broken through the uterus wall and was floating about inside of her. They were worried it was going to perforate (sp?) her bowel. She had to have a general anasthetic to have it removed.

    If I was you I would be insisting they investigate further rather than saying it is "normal" because pain like you are obviously experiencing couldnt possibly be "normal".

    Good luck and I hope you get some answers.

    Take care.

  4. #4
    BellyBelly Member

    Mar 2005
    Limestone Coast, SA
    2,671

    im sorry the Mirena doesn't seem to be working well for you. I dont have advice, however I do thank you for postig this as i have been considering the Mirena, now I wont bother.

    I hope someone else can put your mind at ease

  5. #5
    Registered User

    Jul 2008
    106

    Thanks ladies for the quick replies (so far!) Widdly, I was recommended the Mirena by soooo many people who raved about it - and when I had my last bub, the doc was in there raving about it for over an hour. It really did seem like a flawless idea, but then now over 20% are suffering these effects... I am just a bit scared that it something bigger than 'a few pimples', because there is a shocking rate of people getting cervical cysts forming...
    I am in no way an expert on this... I am just getting research and comfort.

  6. #6
    Registered User

    Aug 2005
    1,226

    hope that you find the answers to your symptoms... xoxo

    I have one and it works great for me.. i had some bleeding to begin with but all fine these days.


    Just remember that it is your body and the clinic can not talk yoo out of getting it removed if that is what you really want... just remember to use some other form of birth control!

  7. #7
    Matryoshka Guest

    Yes i came accross that site as well and have changed my mind about getting one inserted.

    When you think about it - you're not supposed to put foreign objects in your body, if your body does not try to reject it, it will certainly disrupt the balance within you.

    It does seem to work for some, but since i'm already a bit unbalanced i decided not to risk getting one.

  8. #8
    Registered User

    Apr 2008
    Sydney,NSW.
    480

    Hi Misswingbat, Gee I hope you get everything sorted out,sounds like you have had a hell of a time. Iam going to pass this info onto my Mother,she had a Marina inserted as she had thickening of the Uterus(passed baby rearing now)but has had lots of bleeding,bloating just feeling off,down & always complaining she feels sick.She has also developed a red rash all over her face & thought it was her face cream,but she has used the same cream for years.We thought it might have been a food allergy,but now i think it`s the Marina. Also my Mum lost the first one,it too was floating around and had to be re-fitted with a new one.My Aunty said that in some very small cases,they might also be linked to Cervical Cancer . I don`t understand why Doctor`s don`t tell us all the Info we are intitled to know. Hope you are feeling better soon and everythings worka out for you hun.

  9. #9

    Nov 2007
    Earth
    4,434

    Wow, hadn't heard about the class action!

    TBH, I'm wary of any contraceptive implants. Yes, it might be more convenient - as in you don't hafta remember to take it every day - but the side effects from having that many hormones sitting in your body are ridiculous! I mean, Implanon comes with a warning that says it may affect your periods for up to 12 months after removal!!

    I seriously don't think they're healthy - and the longer they're on the market, the more bad stories are coming out.....

  10. #10
    Registered User

    Sep 2004
    Sydney's Norwest
    4,954

    MissWingBat, I won't go into a full post here. Just have a read of this thread I wrote a few months back about a gf of mine.

    https://www.bellybelly.com.au/forums...e-missing.html

  11. #11
    BellyBelly Life Subscriber

    May 2005
    in the national capital
    1,682

    I am so sorry that you are having trouble with this.

    But seriously - if I was having symptoms like that I would get it taken straight out.

    Think of it this way - if you were taking a pill that made you feel like that then you would stop taking it and switch to another one. Unfortunately it isn't for everyone and it seems that you are one of those people.

    Hope that you can get it sorted out.

  12. #12
    Registered User

    Jul 2008
    106

    Thanks Ladies for your responses. I am definitely going to get it taken out, but it seems like whenever I ask anyone about it, they are not as serious as I am - when I sat my DH down and chatted about how I have been feeling, he said that I act like that all the time and I am depressed and angry because I have put on so much weight, and should go on a diet instead... And that the mood swings are normal for me... Not this much. I mean, I have been getting random thougths of suicide, that I don't want my kids, that I should run away, that I am sh"t at how I am as a mother... ERg...
    And when I talk to the clinic, and even when I put it in and raised concerns about my history of mood inbalance, they told me it would regulate it and that it was such a safe thing to be doing, and I really felt stupid for asking so many questions. Even when I rang yesterday she was like "Well, Nurse XXX sat you down for your education session - did you not listen? Did you not understand you will not be getting a period anymore? Do you need to come in again for that education session so you clearly understand??"

    ERRR!!!

    BTW - Mumma B - I love what you said about being unbalanced. That sounds just like me too!!

    Trish - I followed that thread, and even brought that up with the nurse on the day - she told me that it probably wasn't true and that only 1 in every 1000 has complications...

    Mummy of Many - that sounds like me - so bloated, so blah, and feeling sick. Even though I cannot eat gluten as a coeliac, it doesn't even relate to the symptoms of coeliac. I just feel like CR.P, I really look like it too. I used to have clear, nice skin, now it is dull and pimply. My hair is erg, gross, even though I wash it all the time. I am staying up so late, but sleeping heaps during the day. To be honest? I feel like I have just had a baby 3 days ago - you know that hollow, erg, feeling? Tired, greasy looking, still in pj's, baby belly? But my last bub is now 2 1/2 years old...
    And my DH says he cannot notice a difference except I am more grumpy!! And he says I'm grumpy because I am getting FATTER... ARRRRRRRR!!!!!

  13. #13
    BellyBelly Member

    Mar 2005
    Limestone Coast, SA
    2,671

    My counsellor and GP both raved about it too and tried to get me to have it, saying that it would improve my depression and anxiety. I am so glad I didn't go through with it now!

  14. #14
    Registered User

    Sep 2004
    Sydney's Norwest
    4,954

    Let me assure both you and your nurse that this was a very true story!

    I am sure my friend would be more than happy to vouch for this and even more happier if it really was a load of BS.

  15. #15

    Nov 2007
    Earth
    4,434

    Hun, if you're already having 'random thoughts of suicide' keep going to doctors til you find someone who'll take it out, seriously. For 2 weeks I tried to find a doctor to take out my Implanon, I attempted suicide 3 times, and then started to cut the damn thing out myself, and only THEN would they take it out.

    You know whats wrong, so don't let ANYONE make you feel like an idiot - doctors and nurses are just people who have read more books than we have, it doesn't make them invincible.

  16. #16
    BellyBelly Member

    Oct 2004
    Cairns QLD
    5,471

    This is why I don't take any sort of contraception. I think it messes your system up too much.

    Go in there with it writen on your arm "TAKE IT OUT" when you feel like you are being swayed to leave it in look at your arm & remember why you are there.

  17. #17
    Registered User

    Mar 2004
    1,547

    I agree, get it out ASAP. I decided earlier this year, after going off the pill, that I would never use any form of hormonal contraception ever again. They just mess with our body too much. Once we have our 4th baby, DH will get the snip.

  18. #18
    Registered User

    Dec 2007
    Sydney
    168

    I would get it out ASAP. Totally agree with what others have said about hormonal birth control. I have only researched this myself recently and I cant believe what the GP's dont tell you about these methods of birth control. I will never take any form of hormonal birth control again and yep, hubby will go for 'the chop' when our childbearing years are over. HTH

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