Deb, thank you so much for all that info! I have read a lot of that information on the net and suspect I have the lupus/APA thing. I have just been to an FS who has begun testing but she was fairly dismissive. I digress. There are two things about your mail that I MUST thank you for. It reminded me that I forgot to tell the FS about the fact I have been diagnosed with rheumatoid arthiritis in the past, following a bout of glandular fever. So important! (hits self on the head).
Two - you said you can get your pathology results released under FOI? I just had a big argument at my GP as the receptionist would not release my records to me. Unbelievable! I am the patient and I have a right to see them for myself (IMO). Anyway, do you know how to go about this FOI request?
Thanks again, you are so right in all you have said, especially about the three separate opinions.
Can anyone recommend someone based in Melbourne in the area of Reproductive Immunology???? I've heard all the positive posts in this thread about Dr Sacks in Sydney and would love to know about someone with the same credentials in Melbourne.
I've had 2 miscarriages, 12 weeks and 14 weeks and know I have a blood clotting disorder but also suspect there is an autoimmune issue going on. Had elevated ESR and out of control CRP (c reactive protein) when I miscarried.
Hi Everyone,
I'm fairly new to this site, but guess I was in the wrong area previously.
I'd just like to say how great it is to find this discussion group. The information you provided Flowerchild is fantastic. It gives me hope. I have had 4 miscarriages (no children). My first pregnancy was a partial molar one - not sure if any of you know what that is, but the other three have been "unknown" reasons (first one was only diagnosed as I had a DnC).
I was growing increasingly frustrated by all of the mc's. To make matters worse, it seems like everyone around me is getting pregnant and going on to have beautiful babies... not that I begrudge that... just hurts.
My GP referred me to a gyno after the 3rd m/c. He performed a series of blood tests on myself and husband (chromosomes, lupus, hep and not sure of the rest). They all came back as "normal", but with the lupus - it was "mildly positive", so with the last pregnancy, I was put on Cartia - low dose asprin, but still had mc (approx 2wks ago). Although with this pregnancy, I had the flu and had high temp - can't help but wonder if this was part of the reason for m/c - am I just clutching at straws??
After this m/c the gyno has basically said he can't do any more for me and will refer me to a fertility specialist in Perth. I was feeling pretty low, but after reading all these posts, I feel inspired... I want to find out the EXACT tests I had and what the results where... not just "normal". I want to know exactly what the figures are... I'm not leaving my fate in other peoples hands. With all the information - I will be better informed when I go to see the FS (haven't made the appt yet).
I guess that leads me to my question... Does anyone out there know Dr Roger Hart? He is the FS i've been recommended to, but would just like to find out if he's any good - or will I just be another name in a file?
Hi Everyone,
I'm fairly new to this site, but guess I was in the wrong area previously.
I'd just like to say how great it is to find a discussion group on recurrent miscarriages. The information you provided Flowerchild is fantastic. It gives me hope. I have had 4 miscarriages (no children). My first pregnancy was a partial molar one - not sure if any of you know what that is, but the other three have been "unknown" reasons (first one was only diagnosed as I had a DnC).
I was growing increasingly frustrated by all of the mc's. To make matters worse, it seems like everyone around me is getting pregnant and going on to have beautiful babies... not that I begrudge that... just hurts.
My GP referred me to a gyno after the 3rd m/c. He performed a series of blood tests on myself and husband (chromosomes, lupus, hep and not sure of the rest). They all came back as "normal", but with the lupus - it was "mildly positive", so with the last pregnancy, I was put on Cartia - low dose asprin, but still had mc (approx 2wks ago). Although with this pregnancy, I had the flu and had high temp - can't help but wonder if this was part of the reason for m/c - am I just clutching at straws??
After this m/c the gyno has basically said he can't do any more for me and will refer me to a fertility specialist in Perth. I was feeling pretty low, but after reading all these posts, I feel inspired... I want to find out the EXACT tests I had and what the results where... not just "normal". I want to know exactly what the figures are... I'm not leaving my fate in other peoples hands. With all the information - I will be better informed when I go to see the FS (haven't made the appt yet).
I guess that leads me to my question... Does anyone out there know Dr Roger Hart? He is the FS i've been recommended to, but would just like to find out if he's any good - or will I just be another name in a file?
sorry for your losses. We lost our first at 22 weeks a couple of months ago.
When you say you tested mildly positive for lupus, do you mean lupus the disease or the lupus anti-coagulant? The latter is actually unrelated to lupus and causes blood clotting which can lead to recurrent miscarriage. If you have this you may need to be on injected blood thinners as well as aspirin... I may be suffering from a similar condition so I've read a lot about it. I'm not a doctor so obviously this is just advice but it seems like your doctors haven't explained things very well to you... if you like check out hughes-foundation.org and check the diagnosis link.
On the upside if you have this treatment greatly improves your chance of successful pregnancy.
Thank you, Flowerchild for pointing me to this thread and thank you for all the valuable information you give here. I've recently been diagnosed with a compound MTHFR genetical mutation and I am looking for ladies with the same diagnosis to share some information and experiences.
Like Mila, I have a double-gene mutation for MTHFR. My FS has just prescribed 5mg Megafol and extra B12 & B6 (which I have been doing since my first loss). My second loss was chromosonally normal. I would be interested in sharing information with other ladies, too!
WTH - how much extra B6 and B12 do you take daily? My doctor did not say anything about these vitamins, he only prescribed 4mg folic acid. I also take conception vitamins from Pregnacare.
Milla - 4mgs is an odd amount as the megafol is 5mgs... I am not sure why he would have specified 4mgs... The B12 and B6 are required for the absorption of the folate... Most vitamins shouldn't be taken in isolation as they are not absorbed correctly and this is why the other supplements are taken... Often women will also be advised to take calcium if heparin is to be used during pregnancy as well - this is because heparin causes a drain on the body's calcium stores. I hope that helps...
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