Hi Sandra,
I am so sorry to hear of the loss of your daughter and under such stressful circumstances . I can very much relate to your story as a very similar thing happened to me. It was my first pg and a high nuchal fold (about 8) was detected at the 12-wk scan. I had a CVS which showed 'mosacism' which means there was 'extra bits' of dna in the genes. I had to have an amnio at 18-wks to confirm this. Some people have this and they are 'normal' but not in my daughters case who also had major heart problems, she was also small for her gestation, about 1.5-2wks behind. She was first diagnosed with hypoplastic left heart, so I know how serious that is, but it turned out to be something slightly different (we saw a fetal cardiac speacialist), but still a major problem with the heart and other areas of her body as well, there was no hope.

Have you and your DH had your chromosomes checked at all? DH and I had our's checked (via a blood test), and they were confirmed all normal, so we were told that this was a 'random event' essentially and that it was very unlikely to happen again. If you haven't, I highly recommend that you do. I also recommend seeing a geneticist, who can potentially give you more information, they will go through your families history etc and may potentially do more tests if possible. Our gentitict did more testing using fluid left over from the amnio. I found seeing the geneticist helpful in giving me more peace about ttc again, which we are at the moment, but it is still in the back of my mind.

I wish you and you DH all the best and hope for a healthy pregnancy soon. Please feel free to PM (private message) me if you have any questions at all.
x