OH Jo honey - I feel your pain

my 4th baby also..but 3rd boy was born on the 8th of January this year and was placed in special cares nursary. We were sent home after catscans and tests concluded that he was fine...but almost 3 weeks later, at 19 days old, my baby started having seizures. We were flown to the Royal childrens in Melbourne were blood clots were found in his Vein of Gaylen and floating around in his fluid. After having an MRI it was also discovered that Mateauz had dead brain cells due to the rupture of some of these clots...and he to now has Cerebal palsy.

Im actually shocked that it has taken your doctors this long to give Kassidy a diagnosise. Im also shocked that your only just seeing the CP team now....could they have not come to you earlier to help with early intervention? Have you been doing physio with her the whole time? We were todl the earlier the better and seeing that we found out at 3 weeks and have been working hard with Mateauz, we're hoping it will help him. We were also told that due to him being a new born still that the parts of his brain that are still alive would help over ride the parts that were dead.
Either way.....I dont think you recieved the support you should have from the start. Im glad to hear your gettign it now and that your beautiful daughter is saying 'mum'
All the best matie and make sure you keep us in the loop