Hi lara, I just wanted to let you know that I totally understand what you are going thru. I have a very special child my self. Samual, he is now 4 years and 11 mths old turning 5 on the 6th of Feb this year. At 21 days old we were also admitted to Monash Clayton under Prof Freezer. Samual was admitted due to failure to thrive, at that stage neither michael (DH) or I had any idea what CF was about. Or that either of us were carriers. we also had to have the sweat test repeated due to the the collection not being enought the day before. Samual at 28days old was diagnosed with CF. It was a real struggle at the beginning with learning everything when to give meds, when to do the physio and all, but it is just a part of life know and Samual is doing really well. We have found some really loverly friends in at Monash and a every one is just fab and really loving. You are more than welcome to communicate with me at anytime. Know that you are not alone and I am here if you need me.

I will endeavour to send you Samual's story in the next few days. I am however in the middle of moving house so If you dont here from me for a few days please dont stress.

Take care and give your darling baby a huge hug from us.

Nola, Michael and Samual xxxxx