Lara it is natural for you to not be able to turn off, I know that my effectiveness with coping has it's good times and bad. People say to me "oh you are dealing with it so well" I think I am dealing with it because I have to, because if I get too down, then what will Felix do? I don't mean that in a Matyr kind of way, but realising that you are needed kind of kicks in that survival mode and enables you to cope.

I wonder if you are going through this too, sometimes when nothing is going on (no Drs visits or tests) it is then that I feel like I am sinking..I know that I have times where I say awake thinking about big stuff and the small stuff.

Is there any way you have access to that councillor still you mentioned at some point?

The suggestions that dachlostar mentioned are excellent, I know if you are anything like me, setting aside "me" time is SO hard, but it's got to fit in somewhere!