Thanks everyone! Alana seems better today. She slept through until 5:30am, so that would have helped her alot. Still abit running in the nose and a slight cough. After not being able to get her antibiotics down this morning, I rang the pharmacy to get their advise. Anyway they said I could give it to her in a small amount of formula. Thank goodness as I was getting worried about how the hell I was going to get it down.
The CF nurse felt that with getting it nice and early that one course of the antibiotics would do the trick. And since she is heaps better than yesterday that there is no fear of it hitting her lungs. So thats a relief. Actually she seemed more concerned about her being constipated. She is getting in contact one of the CF paeds (Alana's paed is away) to get some advise. We should hear back this afternoon or tomorrow morning.
Katanya feel free to ask anything you want. Alana's lungs are at this stage are as healthy as anyone elses. She doesn't have any inflammation. Due to Cf causing mucus to be thick it becomes hard for them to move it, hence the physio everyday. The mucus traps bacteria causing infections and making it difficult to breathe. It does in the long term cause chronic lung disease, some quicker than others, but that is the outcome for most. Some need lung transplants. The healthier her lungs the better quality of life and longer she will live. Alana could possibly go through her entire childhood never having an admission to hospital, which is what we hope for. I must admit I really only know what I need to know for Alana now. I figure as she gets older and things crop up I will deal with it then. Hope that helped.
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