Arthrogryposis / Contractures in Arms & Legs

[lindie]

Hello Cath,

I havent been on belly belly for a while and was just having a surf when I found your post.

My brother is 30 and has Arthrogyphosis, his is very severe and my mum has been working with this for about 29 years now and can probably help.

My brother is very badly deformed and doesnt have even one functioning joint.
He is mentally as bright as bright can be no brain damage what so ever.

How severe is your little chloe?

Hope this isnt too obtrusive. This is a bad disablity, My brother has been confined to a wheelchair for most of his life. I have watched this all my life, Hes my older brother LOL. There is some great development and some terrific doctors now days!!!

Let me know if I can be of any help at all?

lindie

[Cath78]

Thanks Theresa and lindie for your replies.

lindie she is no where near as severe as your brother. your mum sounds like she has done a lot of work with him. at the moment the legs (knees) cannot open out straight - they say she has 35 to 45 degrees on each leg and we want to get to zero degrees. we saw the orthopedic surgeon on fri for her hip and he said we can leave the brace off and now we'll work on straightening out her knees :eek: he talked about traction but the physio that was in with us suggested a type of splint. which sounds much better than traction!

they aren't sure what it is but my nuero said it was focal arthogryposis so who knows. at least the arms are better (not to zero degrees but close) and now we are brace free we can start on the legs.

what treatments did your brother have?