I havent been on belly belly for a while and was just having a surf when I found your post.
My brother is 30 and has Arthrogyphosis, his is very severe and my mum has been working with this for about 29 years now and can probably help.
My brother is very badly deformed and doesnt have even one functioning joint.
He is mentally as bright as bright can be no brain damage what so ever.
How severe is your little chloe?
Hope this isnt too obtrusive. This is a bad disablity, My brother has been confined to a wheelchair for most of his life. I have watched this all my life, Hes my older brother LOL. There is some great development and some terrific doctors now days!!!
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