Lu hon...go to your MCHN as get her opinion...go to your doctor and get a referal.....if you have doubt already I wouldnt be reading about it...go and search for the help while he is still small and you can get into services before school. Its so much harder when they are at school. The waiting lists are stupid ....and honestly what is the worst they can say...that he is just agressive?
Ive got a GF here that always had doubts that her child was 'normal' and I begged and pleaded with her to get an opinion from a PEAD...it took her 8 months to get in and guess what..he was AHAD. SHe said she wished she had listened earlier so she could have gotten help sooner.
Having a child on the spectrum doesnt mean we have to do this on our own...we need help...we need support.
And lu hon....there is an allowance for careers to help for costs. its a fortnightly amount of approx $100 plus a HCC for DS. THere are also extra bonuses near tax time aswell so them. It all helps babe.
i was fob off so manny times with my son apprently he was normal and i was the one with the problem but persitance works now i know how to deal with things
support is the best thing without a good support network such as child health nurse pead's and speach paths i dont know what ild do they help so much
i agree take him to your health nurse first get her to spend a morning with him and then go from there
I'm going to write out a list of things.
I mean tanties are normal in kids aren't they? Who likes to be told no? (I fricken dont!).
I'm going to call my MCHN today, she is very familiar with Mitch from when he was little and all the issues we had then. I'm going to take everything to this OT appointment and force things through.
I'm just confused because he has evened out so much. His first 3 years were a nightmare, and it is lots better now.
Before I couldn't see the point of getting a formal assessment anyway, he seems so borderline. Now I feel like a total d!ck. I wasn't interested in a carers payment before, I can't see how I'm providing any different care....but I was always to frightened to put him in childcare in case he had a bad experience so I haven't been able to work all this time. That money really could have helped.
I could never put my finger on it but I've always felt I've needed to be close by to defend him
i got forced to put my son back into chldcare by my pead i too had bad exspeiances with child care and i found a great place to send my son and ive seen massive improvments he still dosent socialise well and still gets frustrated and hits out but the girls difuse it quick and he seems to be thriving
its hard when we feel like idoits when we delay somthing i know i did but then i thought to myself arnt we just beeing over catious only wanting the best for our children
Lu I wish I lived closer so we could have a cuppa and you could let rip! Writing things down is really good babe...right the good, the bad and the ugly. It does help when you go for a big assessment. The money doesnt just doesnt help with medication and appointments...it can help with toys to help stimulate the good parts eg for us a DS for down time...a lap top recently.
its hard....yes totally agree. Its hard to think we made something so perfect and somewere along the line there was a hicup in the system. Our kids were given to us because some higher force knew we could cope, knew that we would love and protect these magical little people with our hearts and soul. Your doing a beautiful job babe..its hard to admit that we need help at the beswt of times..let alone help with our kids.
MM - OMG I got the same thing from my sister when she heard that i was getting my tubes reversed to have Vy. I havent spoken to her in 8 years and she was pi$$ed at me and called a shelfish biartch cause I was going to bring another 'spastic' kid into the world. Karma bit her on the butt......she now has 2 grandchildren both on the spectrum and now she thinks she knows everything :rolleye:
i got my assment date today omg im smiling from ear to ear the 31st of august they fly in and will do the last bit towards finding where he sits ont he spectrum
maz u have no idea how much ive cried in the last week over the negitve comments we have received even my other half is doubting keeping this baby but to me its a baby not a problem so murray is a bit delayed but hes got the best help out there things will be fine
my mother thinks murray is normal and its parenting that made him this way lest say we dnt talk much at all
Lucy in the sky with diamonds.
eg for us a DS for down time...a lap top recently.
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