Well done in avoiding a meltdown Mitch!!! Whew... thank goodness he guessed correctly!

lesty, well done on getting a diagnosis. I remember the first time I heard that Matilda was autistic "officially". It was after the ADOS assessment, and the psychologist said "Matilda is autistic" and DH & I just looked at her blankly. I mean, we were pushing for it, and knew it, but hadn't had anyone say it officially to us. Then later the paediatrician saying "So now you have the autism diagnosis, what do you want to do about the ADHD?" and I just stared at him... and said "Nothing"

awww mrsmac, I'm pretty sure that Riley will put it on sooner or later in front of me But to be honest, it generally takes ages before Matilda feels comfortable enough in front of someone to melt down. Unless its Mitch she didn't really melt down, but was uber sensitive.... to the way that she was just being wussy in a way I've never seen her act before.... crazy stuff. Mitch won hands down!!!! I appreciated the zen as well.

Well us.... surgery.....

Matilda came through surgery with flying colours. When we arrived and they were doing all the admission stuff, the nurse said "oh Matilda, I remember you woke up a bit grumpy last time? Do you think we could wake you up with an ice block and start out happy?" I held my breath and Matilda said "What kind of ice block?" LOL

It was the same nurses, same bed, same thing as the scope. So she knew what was happening next. DH got her a new DS game and she was soooo into it (thank GOD!). Then when she woke up, she looked at me and said "Where's my ice block?" She said "I know I have to wee, but I'm a bit scared... will you come with me mummy?" and when she wee'd she said "Its a bit stingy, but not too bad" what a freaking star. Last time when she woke up she wanted a different ice block, wouldn't wee and wound up kicking, biting and hitting me whilst screaming and they sent us home because they aren't equipped to deal with it. She was just such a star and just ate when she needed too and did everything without screaming or fighting it so we got home super early. It was awesome. Her recovery has been a bit touch and go, but its expected. Today she's nearly back to herself!!

Unfortunately the results aren't what we expected, so its taking us a while to accept stuff. We sort of thought our journey with everything would be finished after Monday, but we were wrong. She apparently has significant kidney scarring and some damage. For the next 2 years she will have to have a GA and scope every 6 months and ultrasounds every 3 months. So its worse than DH or I expected. No surgery or drugs can repair the damage, its something we have to keep a very close eye on the rest of her life.... and that isn't easy to swallow right now. My poor poppet.... she's so beautiful, and so scarred.