Aspergers/Autism/Sensory Integration Chatter #2

[christy]

Mate don't worry about other people. Do they have to live in your shoes???

I take respite during school holidays so that I can do grocery shopping. I use Commonwealth Carers and they take Matilda to the park while I go to the shops. It means I can do it during the day and rest at night.... Its easy and helpful. Anyone can access it, and its not like you are taking off to the pub for an hour, and even if you were, it wouldn't be so bad

[murraysmum]

lol i think these preg hormones are adding to the stress

gah how do i stop this when i ask murray to stop something pack up finish or just plain dont touch that he gouges the side of his face with his fingers hes got scratches and skin missing i have no idea why he started it now almost feel like sticking gloves on him

[Lulu]

If I was telling Mitch to stop doing something I would give him something else to do or show him something so facinating he forgot he needed to chuck a tanty over hearing the word stop....

[murraysmum]

ahh i forgot that der me lol i might have to start distracting him with other things his poor face is clawed atm looks like a cats attacked him

[~Saram~]

Murraysmum - hugs hun, hope you get some help!

In all the kurfuffle I forgot to post our news! I have found a new school for Xander - it is absolutely brilliant. Little small school (200 kids) with a special needs teacher, inclusion teacher and a gifted and talented program! they have about 5 kids in y2 on the spectrum and they have allocated classes ased on the kids who share special interests. We had about an hour long meeting about how to introduce him into the school, how they can best cater for him, what hleps - etc. They are very excited about us bringing his senosry tools to school and have some there we can access as well. They have also put me in touch with some of the other mums with kids on the spectrum so we have a little support network already who can recommend OT's etc. I was wondering why this little school in north bris was so ideal... until I visited and saw that it is 3 doors up from AQ early intevention school

Also after over a year I have finally discovered what Xanny's special interest is (background - we have been told by many professionals that he has far too broad a range of special interests to have aspergers) But today while we were watching Tinkerbell I found it! Claasifications, groups and orders of things. He sat there through the movie and classified each fairy But it fits with his pokemon fascination, digimon, bakugan, bugs etc - they all have their elements or types and he like to put them in the groups etc and the order which they evolve and stuff. woohoo - I'm excited! SO next time one of the idiots with lots of letters after their name ask me what his interest is I can tell em

[Lulu]

Wow, I had to go back and read to see where we all were..

Sarah - that is SO BRILLIANT about finding a good school for ds. How much better do you feel?? I can't tell you how much better I am for knowing DS won't be up against...I dunno - you guys get it

Mum was chatting to my uncle on the weekend. He is a teacher and a bloody good one. She was telling him all about Mitch and he wants me to push for a pead/diagnoses. He will pass on the name of one he knows well that has said "anyone you know - pass them onto me" WOW. I haven't pushed the paed thing...cos I just can't afford it and that makes me feel like dirt. I really want him to see this guy purely cos my uncle says so.

I need the extra help and understanding but I gotta say you girls are the best thing I have come across about this . I'm so tired and worn out.
I've totally kicked xp to the curb. I used to welcome him coming here on the weekend for some respite (for me ) but it's not worth it in the end.
DS is doing really well - he manages to pull himself up in the meltdown stakes alot of the time but....there is still so far to go, if it will ever end, which it wont but it takes so much energy.
My ears are sore from screaming and it affects the way I react. I've started to explain how much it hurts my head when he screams, but it doesn't seem to have much effect except for him feeling bad when he settles down again.
But it does really really hurt and melts my own core when he screams like that. I am seriously going to get ear muffs.

*sigh

[~Saram~]

My ears are sore from screaming and it affects the way I react. I've started to explain how much it hurts my head when he screams, but it doesn't seem to have much effect except for him feeling bad when he settles down again.
But it does really really hurt and melts my own core when he screams like that. I am seriously going to get ear muffs.

I am right there with you! We are getting a lot of screaming here at the moment. Meltdown yelling as well as just plan screaming cause it feels good and he is frustrated. I tell DS to scream into his pillow cause it's just too much. His OT suggested we get HIM some headphones and let him play loud music - which I am yet to do but golly gosh it's on my do - to list and gettingout weighted blanket soon too!

Good luck with the paed if you go down that route. I really am so pleased we got Xanny diagnoised it is possibly the best thing I have ever done for him is give it a name which shields us all from some of the hurt.