Freya I too have a debrief journey thread "Meeting Matilda... Meeting Autism". I think you may find somethings insteresting when you read our journeys. A lot of what he does sounds very familiar.
Maz- I hear you on the white foods!!! The only vegetable Riley will eat is mashed potato or hot chips! If I try and mash any other veg with the potato he takes one look at it and freaks.
we had a great tea tonight...sheppards pie and what does mario have...noodles and scrambled eggs I always have to cook 2 meals..one for us all and then one for him
food.... its the bain of my existence!!! I do keep 1/4 cup pureed cauliflower in the freezer to add into mashed potato and scrambled eggs.... it even can go into eggs and used in the batter for french toast.... I put it in "white soup" that Matilda LOVES!
I make a bacon, potato and leek soup... and then hide 1/4 cauliflower in it! Because its all pureed in the end & tastes of bacon and is white! Whammo! I also hide sweet potato puree in most things.... bolognaise, pizza sauce.... etc etc. I hide sweet potato in my baking as well... choc chip biscuits, chocolate cake.... even cinnamon scrolls... Apple puree works as well.
my boy is on the white diet too. He won't touch anything with greens in it unless it is from macca's or some other takeaway place.
The stuff he eats is limited to chicken, chicken and more chicken. Serve chicken in anyway shape or form and he'll eat it.
The movie "Adam" about the Aspy man was fascinating as Adam ate the same food day in and out.
They had macca's for tea last night, at about 4.30pm and by 7pm he was starving. He is always hungry. I said to DH that he doesn't know the feeling of feeling full ITMS and that is another aspy trait. He is so big. I feel sorry for him. He just wants to eat. He camps out in the pantry. I've tried dieticians but he refuses to go. He has meltdowns and tantrums and cries.
I dont have to hide cauliflower thankfully...he'll eat a plate full of htat and brocolli. He wont eat anything..and i mean ANYTHING that was a fluid base or consistancy. NO bolognaise sause, no sauce full stop, no soup, no pasta with white sauce nothing BUT he will eat chocolate yogo's or milo's . everything has to be steamed or boiled, drained and boring! He likes cheese but only in slice form, not grated or in the cheese sticks for school. He loves it when I steam fish..one of his fav things..and I know when things are going pear shaped...he ask's for milk..which he did last night .
oh and last week he asked for orange juice and skulled a glass
Crazy... they are all so funny and different and quirky. Ms M is very particular but sometimes surprises me. I made a fritatta tonight with potato and bacon and hid 1/2 cup pureed cauliflower in it, I served it with warm tortillas and she made and ate two "egg" burritos.... I was in shock, but then little Miss J refused to eat stupid food....
My Alex asks for noodles every night. I put sausages in them for a while and now can put cut up chops or chicken in there. Every meat is called chicken though, except for strasbourg from the deli, that's square ham.
There was talk back there about SPD and how a lot of ASD kids have sensory issues as well. Can it work the other way around, can you just have sensory issues without the ASD ? Are kids SPD 'on the spectrum' ? We first saw a paed OT when he was 2.5 and she said SPD and then the paed. said high functioning ASD when he was 3. I agree with the sensory issues, but sometimes wonder about the ASD - is it that or is it just Alex ? His sensory issues are mostly hearing, touch and food related. Loud or unexpected noises can send him hysterical, exp the ****atoos around here. He won't wear denim either, long sleeves and legs in summer, BIG issues with socks and haircuts, blanket and doona all year round (loves the weight) and very rigid with food. I cried last year when he ate watermelon for the first time even though he looked like he was eating razor blades. And the proprioceptive issues - he's very sensory seeking - bumping, wrapping, falling over etc.
We saw a psychologist last week for testing prior to school next year. In the IQ test he was in the average range for the visual section and below average in the verbal section - not surprised at either of those. She has to send out the Vineland assessment and we go back for the CARS one at the end of the month.
Al's first obsession was Thomas the Tank - he never left the house without a book or a toy, watched videos over and over, lined them up in his order, used to list over and over the names of trains, very rigid in his play. He liked Bob the Builder in a more 'normal' way and now he's into Ben 10. He never used to like the scary Thomas' (ones with night scenes or the odd ghost) but he likes the action in Ben 10 - but I figure this time around it's because that's what he is seeking, the jumping and crashing and karate chopping walls and furniture. But this time I know and I can use it for good and not evil :-)
Question - is having a hoarse or deep voice a common thing among ASD kids? Alex has always been quite raspy and has veins on the side of his neck that stand out when he is talking a lot or is upset. A former speechie said something about nodules - has anyone any experience with this here ?
Barbie- at the moment DS has SPD but not ASD, haven't gone for full testing yet but OT and the EI teacher from school don't think he's ASD.
I have taught some ASD children with deeper/ "different" sounding voices but not all.
DS is obsessed with noodles too!! I have to watch which ones as he reacts badly to 320 which is in a lot of them.
Thanks for answering my questions. Ofcourse since I started talking about this he has been good; granted he is sick though which usually means good behaviour lol
I brought it up with my Dh after I asked you guys about signs and he flipped his lid and accused me of looking to label him 'disabled' all because I cant handle him. Needless to say it erupted into WW3 because I did not appreciate him referring to ASD kids as disabled because they arent and because I didnt like his implication that it was my inadequacies as a parent causing the problems and not Ripleys behaviour itself. He thinks because he doesnt see alot of it that it isnt a problem; and that he is a boy and its what boys do. Granted I might be worrying over nothing but even if he isnt on the spectrum it is still unacceptable behaviour and we might need to source outside help to manage it. I think he thinks because he isnt openly 'different' in his behaviours or fits in with his personal idea of what a ASD kid 'is' then he mustnt be one iykwim? (I hope I havent offended anyone with what Ive said!)
So now I am second guessing myself. Some of his behaviour seems so random; I think thats the big thing for me. I spend alot of time thinking "Why on earth did you do that!?" because sometimes I struggle to wonder how his mind thought up what he does. He is picky with his food but not like what you ladies have mentioned. He seems ok with change; I guess he has no choice considering Dhs job. But we dont have alot of change in our daily lives because we dont do anything really aside from going to daycare which he seems ok with. I can take him to a play centre and he'll go and play but I dont think he really interacts with other kids. Daycare have said they dont really see too many issues with him apart from his temper. When he isnt trying to beat them up he can interacts with his brothers ok.
He is prob just quirky but I'll keep an eye on him for the time being. Thanks for letting me crash your thread and for answering my questions
Barb, I came to the conclusion that DD was just sensory, but starting school has brought out all the Aspy traits x 100 of what he had before.
Freya, if your DH doesn't have the right idea of Spectrum disorders than he can't bloody well go off about it. Give him the list I put up above so he can read for himself. From your posts he seems to tick off quite a few. DS was perfectly fine in childcare and did quite well in Kinder, probably why I am so taken aback at the depth of his behaviour now.
Remember how VARIED this can be. Loud noises don't bother mitch, he can be picky with food but also eats a huge range of other stuff when we are out. He doesn't line things up (BIG indicator) or get upset when his things are out of order.
The diagnosed aspy in my class doesn't line things up either, nor his he obsessed with things like many ASD kids are. He cuddles me when he feels like it and can be quite loving which I didn't expect.
Because its a spectrum there are so many millions of variations in behaviour, i think people have seen Rain Man and believe that is aspergers when its just how it maifested itself in ONE person IYKWIM?
DS's Big Friend at school is a wonderful child, I just adore him and he has all the patience in the world. He was visibly upset (I nearly cried too seeing him sad, he always has a 100 watt smile) and told me he wasn't doing very well in his comprehension test that day because he as Aspergers and is Dyslexic. I nearly fell over and wrapped him in a hug - he went stiff as a board and pulled away. First sign of Aspy I ever saw/felt but he was diagnosed long ago.
Apparently because DS has beautiful manners (which can also be read as "formal speech" lol) he can't be Aspy....phew - lol
See thats what I said to him, its a SPECTRUM not a pidgenhole I doubt Rip would be classed as anything beyond 'mild' but I still think it might be the reason why he is such a handful. Even my mother commented today that he is a 1000 miles a minute and how on earth do I cope. He just does.not.stop; I cant even take him shopping anymore because he has no understanding of acceptable behaviour, even when I know he understands when I tell him 'dont touch/dont push people/dont pull things off shelves/dont run away' because if Jett walks ahead or touches something he pulls him up on it Running and climbing things is the big one but he will not tolerate being in the pram. All hell breaks loose if I even suggest it. I can sympathise with Matilda's climbing the fence Christy; we've had him do that on numerous occasions, climb things we never thought he could (including his bedroom window at my old house even though I removed every bit of climb-aiding furniture; which had a 1.5mtre drop onto concrete on the other side).
Ive got a Drs appt for tuesday so I will talk to him about it then and see if we can get a referral to someone - is a behavioural specialist the right direction or should I ask to see someone different?
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I always have to cook 2 meals..one for us all and then one for him
food.... its the bain of my existence!!! I do keep 1/4 cup pureed cauliflower in the freezer to add into mashed potato and scrambled eggs.... it even can go into eggs and used in the batter for french toast.... I put it in "white soup" that Matilda LOVES!
.
oh and last week he asked for orange juice and skulled a glass
I doubt Rip would be classed as anything beyond 'mild' but I still think it might be the reason why he is such a handful. Even my mother commented today that he is a 1000 miles a minute and how on earth do I cope. He just does.not.stop; I cant even take him shopping anymore because he has no understanding of acceptable behaviour, even when I know he understands when I tell him 'dont touch/dont push people/dont pull things off shelves/dont run away' because if Jett walks ahead or touches something he pulls him up on it
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