Has anyone noticed how well the siblings of these kids deal with it ?
In the holidays I watched Jovie (Christy's DD) calm Riley out of a meltdown!!! She is so calm at dealing with things and so good that she talked him down (I am in awe of that child!!) I also notice that Erin my DD is fantastic with the super kid in my class because she has learn to cope with R.
Awwww mrsmac, thanks! She is very good with super kids. She tends to just get them as well, probably like Erin, but JJ has known no difference. Thats always been her life.
RumpledElf, my two DD's are completely different, but M (who is autistic) can hold a very good beat and sing in tune. Both DH & I are musos so maybe she's got some of that in her as well. Some autistics can't talk, but can play music... DD2 loves music, but can't sing in tune at all.
I have trouble *not* comparing mine as they are so different it is actually hard to find anything they do that is in common! I swear they both grew up in totally different households with different parents. Partly true given that I moved in with my partner when DD#1 was 4, but still ...
DD#2 is great. She organises DD#1, who has this thing for never doing things twice the same way or putting things in the same place or following the same steps to do something and thus is perpetually disorganised and losing things. The rest of us in this house have habits and routines and only lose things when we put them somewhere different.
We had a suspision about DD#1 confirmed last night. She likes food based purely on texture not taste - we had some very spicy sausages for dinner last night from Coles, where we usually don't shop so we'd never had them before. She went on and on about how soft and juicy they were, when we were bracing for her to complain about the pepper. She complains no end about some sausages we get locally that taste very similar (a bit less peppery though lol) but are very firm. She claimed she couldn't taste any pepper at all in them, despite it being by far the strongest flavour in the sausages. She'd fail the masterchef tasting challenges - she can't tell beef/pork/chicken/lamb apart with the exception of roast chicken or chicken pieces that are clearly chicken-shaped. She seems to use complaints about the taste of something if she hates a food for no particular reason (ie, hates the texture) but will happily eat the same combination of ingredients if it is cooked in a different way to give it a different texture. Drives us bonkers so we basically ignore her opinion about dinner since it is so hard to predict what she hates and what she doesn't hate when our brains are wired to think in flavours not textures.
We tend to make really nice tasting food in this house so it is horrible when 3 (or more when we have guests) people are sitting there waxing lyrical about how delicious the food is and the 4th is there whinging and complaining about how disgusting it is
It often escalates into an argument or more, like the time she hit me a few weeks ago. That was over bread.
We really do need help with conflict resolution in this house. It is argument free bliss when DD#1 is away. Even DD#2 is starting to argue with DD#1 because she is so illogical. Arguing over simple things too, like we buy chocolate or something nice, give DD#2 some for her and some to give to DD#1 and DD#1 refuses it, which gets DD#2 very upset as she doesn't understand. DD#1 started arguing with me yesterday because I said I didn't know what we were having for dinner and she immediately started interrogating me as to what we were having and point blank refused to accept 'I don't know, we haven't gone shopping yet, stop it' MULTIPLE times (voice getting more raised and annoyed each time) as an answer. Thankfully that one got cut short as she had to go to school. I wish she had an off switch I could use instead of having to yell 'STOP IT' at her 10 times to get her to stop. And its not just arguments that I can't stop by saying stop, she does it on her bike too (and then rides smack into something), or in other dangerous situations you need her to stop Right Now. I've had to physically stop her quite a few times. I dread her being old enough to want to drive ... she'd ignore the instructor completely and drive into a truck.
Her latest school report for ONE subject actually agrees with me though! 'doesn't listen or follow instructions' and 'talks too much' - its not just me! The ONE subject at school that isn't academic but has rules the teachers are actually noticing she can be a pain and aren't falling over themselves fawning at how smart she is!
She's also not very good at maths but we've known that for a long, long time. Maths has right and wrong answers. You can't re-order things each time like you can in a language-based subject, or just make up your own creative answer and expect a high grade for being different. We stopped playing maths games with her at home or in the car some years ago as she didn't like to actually answer the puzzles and we'd get into arguments with her.
Oh and her school reports at the old school used to constantly bring up conflict resolution as something she isn't good at (clarification revealed the same issues as at home - she is right and needs other kids to agree with her Or Else), but it hasn't been picked up yet at the new school, probably because there's more students to supervise and she hasn't yet done something as dramatic as sock another kid in the face and give them a split lip like she did at the old school. She's the pretty, smart kid. She can do no wrong. Grrr. They'd come down harder on her if she wasn't the #1 kid in her class and I still can't forgive her last teacher for saying she was the #1 WITHIN EARSHOT. Kids don't need to know that kind of stuff. Parents don't really need to know either ... there's more to life than academia.
ok Ladies I have managed to fill out forms etc and lodge with centrelink. I have been accepted for Careers allowance but not payment, and am now protesting that they back payed me 2 days instead of 12 weeks. I had to wait for reports to come in so it took longer then there period, but this was not explained to me.
In the process now of registering for Disability SA and am still waiting on a report from an assessment we had , its been over a month now and I am growing impatient.
The reasons are:
In 2 weeks Hamish will get a new teacher, without the reports and the help of Autism SA there is no support in place for him at school.
His behavior this week last week has been really bad, he has received steps at school every day last week. At home he has been unable to concentrate and has started pooing his pants again.
So basically I am trying to jup through all the hoops i can but my hands are tied till we get this report. I am wanting to book Hamish in for OT and was hoping the back pay would help pay for a bulk lot of visits,,,,,,,,,,,grrrrrrrrrrr
I thought that getting the diagnosis was the end, but in reality its the start of another roller coaster ride.
Sorry for my rant, I am tired and feeling yuck today and a little helpless. Trying to look after my other children as well as Hamish. Its lik I have two toddlers at the moment...
on a side note has any one had any success in a change of diet etc...
Whilst Riley isn't ASd only sensory I noticed a big change when we removed 320 from his diet, it really effects him but most of the other failsafe stuff he didn't change much.
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