I know I have jsut been thinking of how sad it must be for him. I am thinking of pulling him out of childcare. IT will be hard, but my parents have said that they can help out more, so that I can still work.
We have asked the director to set up a meeting as we want to know why we were not told about this. He also now has a referral to a child psychiatrist, as we happened to have a pead appt for DD, and basically hijacked her appt to discuss all of what has been going on in the past few weeks.
I really want him out of the childcare. Basically what the EI lady told us (As she observed him there a month ago, but also didn't tell me what was going on till now) was that as he is not distruptive, he just gets left. That's just not on and not fair!
I get the feeling from the kinder that they really don't want him as the kinder teacher keeps telling me it is going to be such a busy group FOR HER. Not my problem. That their own planning problem.
I am also now got the guilts about all my focus being on J, so little Miss E is missing out.
I wonder if I will ever be able to accept this. I just don't think I can
Hi all, sorry I have been flat out settling Hamish into school routine again.
His hand has healed really well, the Dr's were really happy with how well he healed. The major problem for me has been stopping him picking at it
He has sensitivity issues with his hands so would continually pick at the dressings, however it is just about gone and looks like only a little amount of scaring.
However I have noticed his hand seems to be super sensitive to everything at the moment.
This week has seen the return to school, and with it the first day. He walks into class and his seat had been moved. So we had a minor meltdown.
After about 10 minutes of talking to him and trying to point out the positives of his new seating position he said he would give it a go.
He has done really well at school in terms of his work this week, however we normally go down hill fast in the 2nd week for some reason.
So we are trying a reward system for him to see if he can maintain it for a little longer.
On the home front after having a chat to Autism SA we have bought him a puppy. His very own to look after , and the bit he likes the best is it gets to sleep in his room.
The hardest part for him is the social aspect of life, he just doesn't get it. He doesn't see the need to talk to people unless he really wants to, he hates people touching him full stop. He does not like loud noisy busy children apparently they annoy him.
We are still waiting for a meeting with everyone at school to see what assistance they are looking at giving him.
My biggest concern at the moment of course is for his safety and the fact that he blindly does what people tell him to do.
In the meantime I too struggle to find the balance between him and his siblings, a tween girl fast approaching puberty who needs braces and has lax ligaments and a toddler who has a temper , jealous streak and constant ear infections.
The joys of parenthood I guess.. I really wouldn't have it any other way as I love them all just the way they are. Just tried and worn out tonight
Officially with his Griffith's testing he's done - none of its says his mental age is 24 months or more - which is what is needed to start the offical testing with his autism...
The test he is going to do is the ADIR interview one
His speech is at the equiv of a 15-18 month old (he will be 30 months/aka 2 1/2 at the end of the month)
I knew it was bad.. but seeing it in writing really hit home.
So yeah - booked back in for 14/02/11 for the next Griffiths test and go from there
In the mean time he has told us that he is officially 'developmentally delayed' and he has 'sensory processing disorder' and that alone he said will help us get EI for him.
He said that they may alone be his problems, but can also possibly be ticks in the autistic box too.
Sigh.. I am exhausted today.. its been a long day!
Matilda's been going so well all year.... some minor setbacks....
Friday arvo had a school "celebration" that they put on for the families and some official politicians to accept some grants that the school received. We showed up at 3pm at the end of school to help with everything. I was in order of organising the food, I didn't do it all, just delegated and made a cake.
Well.... the "ceremony" started at 5pm, at 4.45pm Matilda started going flappy. She went happily enough to the ceremony, but afterwards.... she lasted 30 minutes and then started having issues with everything, than at 6.45... well the world ended. She had a huge meltdown whilst everyone else was around. We had to drop everything, pack up and leave. I carried her to the car while she scratched my face and kicked me. Then it took 10 minutes to put her in her seat. I ended up with blood on my face, DH had scratches all down his arm...
We got home and well.... it didn't get much better, at 8.30 she finally fell asleep.
Today she's been an anxious, flappy mess. I hate seeing her like this. She's doing everything she can to keep "high" and stimulated. She's just messy. Of course, I had to work today and she saved the final meltdown for me.
Christy love - NEVER be sorry for venting, OK? That's what we're here for and we're just sorry that there's a need to vent in the first place. I hope things pick up for you all.
What you said about her doing everything she could do remain 'high' resonated with me though - E has had a really nasty flu all week which meant he stayed home from EI. Yesterday he started recovering, and was at that stage of feeling well enough to be bored and cranky, but not well enough to focus on anything constructive. Most of the day was spent with him throwing things around the house (and occasionally hitting myself or his sister with them, randomly though, not deliberately) and generally being horrendous. I'll admit that I lost it at him after getting clocked with his wooden abacus - and had to put him in his room until I calmed down enough to deal with him losing at him. Don't feel proud of myself for losing it but there comes a point, right? I'd been doing so well and staying so patient with him, but a week of no sleep and no breaks really took it out of me.
Anyway, what you said Christy makes a lot of sense, because he was quite determinedly working himself up all day. By end of day he was frightful. Fortunately he slept well and has been good this morning, but was working up again - DP has taken him for a drive to see if he'll go to sleep. But I'm not sure how to handle him when he's so determined to push my (and his own) buttons.
Christy- How are you going? I hope things have improved since that day. It is just so tough.
I came across agood iphone app. It is called the Time Timer. It is $4.95, and is basically a timer clock, but very visual so that kids can see how much time they have left. we are using it for J, so that he has to participate in activity for a certain length of time, and he can clearly see how much time he has left.
Lucy in the sky with diamonds.
I have jsut been thinking of how sad it must be for him. I am thinking of pulling him out of childcare. IT will be hard, but my parents have said that they can help out more, so that I can still work.
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