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Turkish Delight - i am going through the process of getting Hamish diagnosed with Aspergers.
He gets a warning every day for talking, he doesn't seem to get the when someone else is talking we listen cues.
He is not the most talkative child unless you get him started on a topic which he is interested in and then its hard to stop him. His latest thing is Bionicles, everything is bionicles, every drawing every conversation is about them.
Getting dressed is one of his other biggest challenges , he has sensory issues so hates the feel of certain materials, collars, zips etc and hates socks with a passion. I have made him a visual checklist , we have some boxes made into a train and on the side are magnets, then i put the picture of what he is to wear on each carriage, when he has done that item he takes the picture off and puts it in the train...
I too have cried about this, My Mum is a great support and has stood by with all of this my DH really doesnt have much to say about it and my Dad thinks he will grow out of it ...
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when i called her Donvale office i asked about the city office and she said that i would be able to get in there just 2 weeks earlier, so i took the donvale appt as i hate driving into the city.
I will call Melinda Gladman and organise a time. I need to see the psych more than he does for his problems
Oh Lu, how can i ever repay you? I would have searched and searched for a good specialist and probably not have found one either. So thank-you.
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OMG
OMG
He will not wear pjs, where the pants have buttons. I have to cut them off. I cannot believe it. I just thought he was weird. School pants have zips, so i had to find one with the elasticized waist as he won't wear the ones with zips.
He loves touching/feeling skin though. He will rub my arm whenever he is close to it.
I am still shocked.
You are very lucky that your mum supports you. I have told my mum and she doesn't believe us, because it is a syndrome with no physical symptoms.
Devrim is also quiet when he is not interested in the subject matter, but he will try and butt in and say something about a topic of his interest. He doesn't understand either that you need to wait your turn, when other people are talking. He just won't do it.
Lucy in the sky with diamonds.
Nah, thank my mum who spoke to my uncle who is the Head of a boys school who deals with a few aspys who has a friend who is the bestest Autism bloke in Vic who is also booked to the eyeballs but was happy to talk to mum himself (you know what specialists are like) who gave mum the numbers of 2 others that he recommended most highly and Chitra was one of them who also happened to be on ABC radio recently chatting about one of her patients who is a world class surfer, so therefore is a massively high achiever and Chitra helped him focus...
PHEW - got that ?
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got that!
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TD!!!! He's got some sensory issues!!!!
88% of kids on the spectrum have sensory issues, and some kids do without being on the spectrum. Sensory issues include tactile, auditory, oral factory, proprioceptive and visual... The way their brain processes certain parts pertaining to these things can cause irregular responses. For example, I know a child who hates the feel of denim... says it feels like knives.... M used to have panic attacks when a siren went by. M also has found out that sucking calms her down, so she does things now to self soothe including sucking her thumb which is a recent development.
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Auditory for Devrim - is any loud noise. He can't even stand the tv when its up load or music or just anything loud. We had always thought that it was because he was raised in household with adults who always thought of him and would make no noise when he was asleep etc..
I gotta google sensory issues.
I spoke to DH last night and said that i really need support in this. He will usually not attend any appts i take Devrim too, for anything as he finds that he is useless since he cannot speak english properly. I am okay with that but want him to do research about it in Turkish so he has an understanding of Asperger's too when i speak to him about it. he told me last night that he doesn't believe that Devrim has Asperger's. I think he is in denial, but i'm gonna do whatever it takes, even if it means getting him assessed and it comes back negative. I'm not going to give up. I know he has some issues. I can see it. he can too, but thinks that Devrim is just being difficult for us.
We have parent-teacher interview today. I'm going to ask his teacher if she can see anything "different" about him. He told the teacher that he found this class to easy for him. He was doing homework last night and the whole time he kept muttering 'too easy, too easy".
Christy - i started reading your M - autism thread yesterday. I was nearly in tears about M screaming/crying bits as Devrim was the same. Dh and i would sit whilst he cried after we had tried everything to comfort him. It was so hard. It brought back so many memories. I too had PND because of it.
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TD - here's a link to a Sensory Integration article in the Turkish Paediatric Journal : The Turkish Journal of Pediatrics
Also, if you google you can look for :The Out of Sync Child which is helpful for kids with Sensory issues and who are on the spectrum.
Lucy in the sky with diamonds.
Now you know why I'm bonkers Turk
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Christy. from that website i found great stuff in Turkish for DH.
esp. one of the lines said - that kids with Asperger's find it difficult to ride a bike, in that they can't manage the co-ordination.
do you know for how long we have been trying to teach D to ride a bike? He is 8 and still can't ride a 2 wheeler. We joked that he would be the 15 year old with the training wheels trying to catch up to all his friends.i will never joke about it ever again and never allow anybody else to do so either. So what if you can't ride a bike.
Lucy in the sky with diamonds.
There are also things you can do to help co ordination etc...in fact it's all tied in. We do proprioceptive excercises at school in the mornings, it really makes a difference to DS in the classroom.
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my shoulders are starting to feel heavy again. I have had this feeling for so many days now. I have to keep stretching them out.
Do you know what girls... before kids i used to ask DH if you could love a child with a disability/illness/syndrome whatever, more or less than a "normal" child? He used to shrug. I now know. I love him more than i used to. I need to nurture him more. Keep him safe more.
Just mini whinge.
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oh TD
Still joke around... who cares about bike riding anyway. We laugh with M all the time saying she can climb a 6 foot fence no problem, but you ask her to cross her legs while walking sideways and there is no way on this earth she could. Matilda has proprioceptive issues and through OT we have seen HUGE improvements. Gymnastics and swimming have helped tremendously. You will find what helps him through.... you already have if you've gotten this far
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it finally is making sense which is a relief, but then again, i think of all the stuff we need to do and people to see. I don't care about the money side, it is the time. Like we don't see Chitra until July. I want answers!
I just drew up a hopscotch on our pavers out the back because DD wanted to play. I guess he could too! It would practice his hopping, balancing skills
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Hi ladies,
last night i took The kids to the shop after school and as a treat i brought them a packet of snakes to share. As i opened the packet Hamish dived for cover in trolley and covered his ears. I asked him what was wrong he said the squeaking noise the packet makes before it opens gives him a headache.I had never noticed this noise before but it is there and he heard it over all the noise in the shop... As i have been noting things down it seems he has a lot of sensory issues, tactile, audio and taste to name a few..
He had a friend sleep over last week, it was hard work but gave me an insight to how his friendships seem to work and why he doesnt keep friends. I am hoping to get him into some social interaction therapy..
On another not i went out and brought "All cats have aspergers" by Kathy Hoopmann. I brought this book to help my 11 yr old daughter understand Hamish better. What a cute book it is too.
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Okay way to stress out your ASD child....
Take them out of their routine (school holidays), have their mum work more than usual, get them back into their old routine, then send dad away for a weekend, and you have one messed up kiddo.
Poor little M. I took her to church, not because I felt up to it, but because I didn't want to screw up her routine anymore... but it wasn't a good idea. It was communion... and M doesn't cope with that on a good day. She usually tries to get to the front of the church and drink all the little juices. BUT today she wouldn't even go in the main church building... fine, I took her back to where they have set up a creche like place for us to go during church, which feeds a video of what is going on in church. She decided she wanted to go to Jovie's kids room before the kids arrived, but I couldn't get the swing down for her and she lost it, then we went back and she saw on the video the communion juices.... then I tried to get Jovie settled into her room and well... Matilda lost the plot. Screaming the place down.
One of my friends, a young 20-something metalhead guitar player, was trying to help but it made it worse. Then I just packed up and said "thats it, we are leaving" and carried a screaming Jovie and dragging a screaming M behind me. My friend was trying to help because M kept biting and kicking me and wound up walking 3 metres behind me just trying to make sure M wouldn't dash out in the road. M kepts running back and forth between me and the church gates... finally laid down in the middle of the road in the rain kicking and screaming and punching the ground. My friend stayed in the street trying to block traffic and I stood there trying to figure out how to do it. The poor guy, he's such an amazing guy, and he kept saying "I just want to help Christy but I don't know how". Finally, I talked her back into going back to the church and setting up the swings in the kids church area. I told my friend that just being there and helping make sure she didn't get hit by a car was the best thing, I thanked him for helping her stay safe and just staying with me while she was like that.
The creche for 2-4 year olds was set up by a paediatric OT who works with Matilda's OT, so alot of the stuff is in the room, like the hammock swings, and a mini trampoline, fit balls etc etc. We did some OT work and she quieted down finally, with 15 minutes of church left to go.
When DH got home this arvo, I went straight to bed.... I'm tired and sore from carrying and dragging children.
Lucy in the sky with diamonds.
bugger and dammit hun
I love your metalhead friend though xoxoxo
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Hugs Christy, we had the same scenario but at a big family function.
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