im just really looking for an outlet at the moment and to gain some knowledge on what im looking for and what are obvious signs that im overlooking..
My son has Adhd and has also got signs of autism but dr will not diganose him due to his vocabulary and speech..
He told me my son has signs of High Functioning Autism but he still cant seem to wrap his head around my ds's intelligence and therefore can not be diagnosed with autism.. I just want a full diagnosis to help my ds and also take some weight off my shoulders
Some things he does just so you can tell me what you think:
He constantly is hiding under tables and chairs basically anything he can fit under.
e.g- today he had a sepcialist appt and my son spent the time under his desk (dr's desk)
He acts like he is a baby and always causes a commotion when out in public. drops onto the floor and becomes limp and babbles like a little baby and will yell out silly noises
He is ok on eye contact but will only give eye contact to people he trusts
My son also has adhd so at the same time he is hyperactive its very confusing..
I have to basically tell him 2 days in advance where we are going to try and prevent a episode but usually doesnt matter his always going to do it whether i like it or not
He hates crowds if i take him into a shopping centre he will get frustrated and revert to baby like behaviour
He is extremely sensitive to noise even if my dd cries he covers his ears and even a car door shutting.. This due to ongoing hearing probs since birth but still highly affects him
He will never eat food with out wanting to know what it is all about and smelling it and looking at it
He also gets extremely aggressive if you breach his space boundaries and can not play with anymore than 1 child before he goes off his rocket and i mean extremely violent
so much more but i dont want to go on and on,,
Im just really at a breaking point, I know his only 4 and i shouldnt look into it so much but its that out there it gets pointed out to me.. he has been expelled from pre-school abused at prechool due to his issues by a teacher, i feel like im going to lose my son and never see the real him ever again...
I really just wanna break down and cry cause i just want him to be at peace and happy.. and i know his not... even looking in his eyes i see dispear..
Tan, You need to do what is best for Mr H, and I remember reading that post. Those boys are the worst thing for him right now. If that means a change of school then it is definitely worth looking at.
Zaki, Contact someone at the NSW Association for Gifted and Talented Children (NSWAGTC). They are a wonderful group of women, some who were in the same position as you with higher functioning spectrum children. They might be able to help you with a contact for a paed that DOES accept HFASD and can get him the help BEFORE he is too old for the funding. There is a cut off and it sounds like his Dr is messing you around.
Had our Paeds appt yesterday. She is looking at Spectrum for Princess. Have a battery of blood and urine tests for her including iron, lead, thyroid, blah blah blah. That is going to be fun, but she told me to take it to Lismore Base because they have the people to help.
Also she said that due to the HG I suffered and Princess' low birth weight we will have future weight problems. It is hard because she is constantly hungry. I am going to go talk to a chemist to see if there is something we can do about that. Its just started on her too, she went from healthy weight to at risk in just a couple of weeks.
Dream of perfection shattered =(
She things Tsunami is ADHD as well, but as I said to her, he isn't hurting anyone or anything, including himself and so if he is, its only his lack of concentration so I would prefer to NOT medicate my boy just for that. So she told me to use fish oil to see if that helps, obviously mentioned diet but we have already been eliminating our nasty numbers.
With Chill, she just thinks that the stuff that is worrying the school is not entirely a "him" issue. He is in survival mode after the last school and she feels that its not really anything she can help with but will keep seeing him more sparingly as she doesn't want him to develop depression and anxiety from it. (For those that missed, he was shoved into the path of traffic and threatened with a knife at his last school - hence why we moved).
Tan, sounds like a change in school might be the way to go
Zaki, I can see some similarities between your DS and my DS1 hang in there, no advice, just hugs
HA, Massive HUGS for you too, what an overwhelming day. How old is princess and how much does she weigh?
We are still trying to settle in to the house, every bit of wind and DS1 freaks out and says "roof not come off" poor thing, he's terrified now.
I found something that helps calm him down today... it's not exactly the best thing, but it is at the same time iykwim. It's my vibration machine! He sat on it for about 2 mins and is now still calm after 30 mins! that's a record for us!
Last edited by Early Kids; February 10th, 2011 at 05:20 PM.
Firstly I'm so sorry for the selfish post. . . .I have not had a chance to read this whole thread yet.
I finally did it. I got the courage to have a good chat with DD's daycare teacher today about my suspicions that DD has a sensory disorder and her teacher did agree that DD has certain traits.
I have suspected something for a couple of years but the only thing thats held me back is the fact that DD is actually very social with other children so I kept telling myself that she is okay.
The main traits that DD displays are:
She wont look you directly in the eye
She is always on the go running around etc.
She is very very clumsy. She seems to trip over thin air and always has bruises on her legs
She is very tactile. hates cetain textures, dislikes anything woolen, hates getting creams or sunscreen put on, hates toothpaste on her toothbrush etc
She is very into routine and really strugles with change. She will have a major meltdown to the point of being inconsolable at anything that is different.
She has an awesome long term memory and is very intellegent. Boy is she intellegent.
She has been quite slow to TT and still refuses to poo in the toilet
She kind of seems to lack empathy.
I'm sure there is more that I just can't think of right now.
I have made an appointment with our local child health clinic to get the diagnosis ball rolling. Can anyone here tell me more about what the process will be? Her daycare teacher said they will probably send them forms to complete about her behaviours at daycare and may also visit the kindy to observe her.
MamaSpice - your DD sounds like my DS (he isnt much younger than your DD, a Jan 08 baby!) except my DS can look you in the eye sometimes. We're currently trying to figure out our best avenue for assessment. Our first step was to go see a child psychologist as they are the ones who can do the assessments. He is in speech therapy atm and should be in occupational therapy but unfortunately we cannot afford the private costs right now. Your DD's daycare teacher most definitely should put any observations in writing, my DS's daycare teacher is currently doing a social and behaviour observation report up for us. You've come to the right thread for advice and support, the ladies in here have been wonderful to me since we started on this rollercoaster!
Ugh. Things are not good with us. Rip's daycare teacher pulled me up last week to raise concerns over his social behaviour. He has become quite a loner at daycare now, he doesnt play or speak with any of the other kids, not even his little twin 'girlfriends' from whom he was inseparable before the christmas break. She mentioned it again this week; and that she was going to start observations and write up a report for us to give to his assessors. Even she said he isnt the same kid he was 6mths ago.
We're currently saving up for his assessments because the wait lists for public assessments is a million months long. We should have it all done by April.
Hi Freya, yes DD does sometimes look you in the eye too but mainly if she comes and tells you something. If you are trying to initiate a conversation with her though she won't do it.
i'm going to see what going the child health clinic road is like but if there are big delays I'll have to just get a referral to a specialist I think. But yes they're sooo expensive aren't they. I have to take DS to a paed on monday and it's costing $275.
DD's teacher is very switched on about sensory disorders etc. DD had a little boy in her class last year who has aspergers. Her teacher says that DD's traits aren't as severe but suspects she could defiantely be mildly affected.
The Spectrum and other cognitive disorders are so varied its amazing! Ds was informally assessed using the CARS assessment for ASD by his speechie and scored highly on it, yet Ive had a few people tell me because he is often loving and isnt completely socially inept that he couldnt be ASD. They seem to forget that ASD can vary in traits from child to child.
Sounds to me from what you described your DD could be a Sensory Seeker. My DS is a seeker, which is why he has a huge tendency to be overtly physical/aggressive and exaggerated in his everyday life. If he cant be stimulated by it he doesnt want to know about it. He touches, he tastes, he smells, he even deliberately hurts himself in order to process life. Its quite full on sometimes. If anyone looked at him they'd think I abuse him with the amount of injuries and bruises he has.
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