thread: Aspergers/Autism/Sensory Integration Chatter #4

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  1. #1
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    Add ~clover~ on Facebook

    Sep 2007
    travelling
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    Subscribing, will try to come back tomorrow to have a read & explain DD2

  2. #2
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    Jan 2008
    Just Coasting
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    Thanks so much for replying EarlyKids

    Her triggers are usually quite obvious. It's usually when something is not "how she thinks it should be" eg: she dislikes the fan on when she goes to bed but it's so freaking hot we usually turn it on for a while after she's gone to sleep. Anyway, she woke up at midnight and noticed the fan was on which lead to a 1 hour meltdown. Even though we turned if off straight away. Another was, I had to strip her dora sheets off her bed cause she wet through and even though I explained why and that they'd be back on asap she lost it cause her dora sheets weren't on the bed. Stuff like that. And it's not just a normal tanty, she really struggles.

    thanks again x

  3. #3
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    Oct 2007
    Eastern Wheatbelt WA
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    I hear ya that's exactly what we get here. DS1 has 'cars' on his bed and washing those is an absolute nightmare! He also has a security blanket... which goes EVERYWHERE, couldn't even tell you the last time it was washed We are still trying to work through those ones and it's really tough, as you know.

  4. #4
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    Feb 2009
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    Welcome to the thread Mama Spice. I truly can relate. I used to wonder when the cops were going to rock up on my doorstep. I am sure some kids not liking bath time is normal, but the screaming from Princess during a bath was something else entirely. My ears would be ringing for hours afterwards. It has thankfully passed over now and bath time is not the nightmare it used to be, but she is still set off by the tiniest thing.

    Tan: I am so glad to hear they have come to the part with helping Master H. Hopefully this will be an extremely positive role for his future now. Especially learning about 'real friends'. May those boys never get near your boy again =(

    Hurry back, Clover!

    Here, I have a problem.

    Princess was moved into SPED for the last term of 2010. That was fine and we were pleased, only this year her new teachers (yeah, plural - not at the same time! UGH! Job sharing special needs kids, you have GOT to be kidding me, right???) have this policy which DH and I are having an issue with. We have to go pick Princess up from class or the quad (after all the other kids have been picked up and her teacher brings her up). She is not allowed to walk to the car herself.

    This is a independence skill she has had for 2 years. She has been walking to the car without issue or drama since year 2. I understand if its a whole classroom thing, but we are very very worried that it will drag her backwards. People only have to suggest something and she runs with it and won't change it. Someone once said her aversion to white foods could be a dairy allergy, and now nothing at all ever in the world is going to convince her she is not allergic to dairy food. She isn't, but she wont believe us or the paed that she isn't.

    If they make her believe she needs to be picked up from the quad, her ability to independently navigate her way around is going to be utterly destroyed.

    Problem is, I don't think the school is going to change their mind on it. I am going to try but it may not happen. Being regional, we don't have any other school options either.. so here is the problem.

    She coped mentally and emotionally in mainstream, she just wasn't doing it intellectually the way all the other kids do. But if I have to, should I ask them to put her back in mainstream and supplement her learning at home?

  5. #5
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    Jan 2008
    Just Coasting
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    Early Kids, DD has a security thingy too, hers is one with a ducks head on a blanket. It's her "duckie" and god help us all if anything ever happens to "duckie". She is good at Kindy now she only has it at rest time and the rest of the time it stays in her bag so that's a step forward.

    Honey Aspen. DD has been okay at bathtime but HATES getting her hair washed and she HATES bubbles in the bath. We had a moment last week where I put some pinetarsol in the bathwater to try to relieve her ezaema. Big mistake. She lost it at the bathwater being yellow. I had to pull the plug and start again. Oh and she very matter of factly told me to take the pinetarsol back to the shop!

    What a pain that they wont let your DD walk to the car on her own when she is very capable of it. I agree with you that it could be detrimental. I hope you can get a resolution (and that the school see sense)

  6. #6
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    MS, sounds exactly like DS1's, it has a sheeps head on it hehe, he calls it "ma"

    HA I have no advice sorry, but your story makes me sad and angry. I have no idea what I'd do in that situation, how tough for you

  7. #7
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    Dec 2005
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    We have had blankie incidents too. All my boys have a tagalong blankie and a bigger blankie that was made by my grandmother-in-law. Ds2 is the only one thats truly attached to his tagalong blankie. He'd take it everywhere with him if Id let him but when he is home it follows him everywhere, when he sleeps he strokes it. We've had panic attacks over not being able to find blankie but the other week he asked me to wash it because he had wet the bed. I expained 3 times that it would have to go in the machine - yep no worries - so I washed it. 5 seconds after the machine filled up he spat it. Screamed for 45mins straight it was a nightmare. Needless to say it wont be washed again.

  8. #8
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    This a thread I started a while ago about DD2.

    OMG she's driving me absolutely bonkers!! To the point where I'm starting to wonder if there's something more going on with her, but there's nothing that stands out as something ITMS.

    Ok, she's always been my difficult child. From the day she was born.
    She was born a screamer. Colicy for months, because of this her routine as a NB started with her nights being 3am - 2pm. She would just scream to sleep. It was so hard to deal with at the time.
    I managed to get her back to 1am bed times by 10 weeks old, but it took years to get her into a decent, before 11pm routine.

    She has alot of trouble with her routine being broken. As a baby, the very rare occasions we'd sleep somewhere else for a night, she would scream for hours on end & would not sleep. I remember a birthday of mine. We stayed at MIL's the night, & she was ok til somewhere around midnight. I was still up, so when she wouldn't settle back down, took her out to sit with us. An hour later she was still awake, so I went to bed hoping that'd help her sleep. After 3 hours of screaming, at 4am I took her for a drive, almost an hour later she settled & fell asleep. The second I got out of the car she was awake screaming again. She was about 7 months old.
    Again at a friends place. After 3 solid hours of screaming, we get up & go home at 3 or 4 am. This time she was about 16 months old.

    She's always been loud & full on. She simply doesn't understand quiet, lol!
    Its a bit like DS. He's 2 turning 3 & can be quiet if he remembers, but forgets in seconds. I guess most kids are like that. But even Bri's whisper is over the top loud!

    She started school this year. She was only 4.5 at the start of the year, but she was too much at home. She needed stimulation, more than I could give her & I couldn't afford 5 days of day care. Not only that, she'd started to refuse to go. Would cry the second she found out it was DC day & insist that she didn't want to go. Seperation anxiety I think.

    But she's loved school. Every second of it. Not one day has she not wanted to go. I have to fight her to stay home when she's sick! These holidays are going to be fun for her. She still doesn't understand holidays/weekends etc.

    I don't know how to explain her bahaviours? Kind of compulsive? Like she can't control it?
    She's 5.5 & still draws on the walls. I don't mean the odd scribble here & there, we have drawing on every wall in the house & thats with it cleaned off at least once a month.
    I don't understand it. She knows its wrong. She knows she'll get in trouble, but she'll still sneak off to her bedroom, hiding a pen or pencil & draw on the walls, or on her bed.

    I just bought her & DS a $500 set of bunk beds. I told her if she draws on the wall, or her bed I'd take it back. I'm telling you, if you saw the amount of pen/pencil/texta on that bed, wall & roof, you'd think I do nothing. You'd think it was years worth of drawing. You wouldn't know it'd been all cleaned off not so long ago for a house inspection.

    I've told her if she keeps going & the real estate see's it, they'll make us move out & we won't have a house any more. I've yelled, smacked, taken every pencil/texta I find & throw it in the bin, but she still finds them. I don't know where or how, coz I can never find one when I need one.

    She's a very emotional, sensitive child. Its very rare that I smack her. Absolute last resort, but I do, because i don't know what the hell else to do at the time!
    If I send her to her room, she & tell her she's to stay there, she gets so upset she vomits at times. & she's soooo loud! I can't imagine what the neighbours must think!

    This (the drawing) has mostly been in the last 6 months. Well the worst of it has been the last 6 months. I just don't get this. The last 2 weeks I've also had a hard time getting her to get enough sleep. I'm hoping this is just more about the end of the year, but I dunno.
    We had an afternoon at the beach, then BBQ at the park with friends. We were home about 8.15, but the kids wouldn't have gotten to sleep til at least 9. Since then Bri is often awake well after 9.30/10pm, despite being sent to bed at 8. 7.30 last night!

    I'm having to wake her up in the mornings & she winges about being tired. So I try telling her stop playing when you go to bed! Go to sleep! Light on or off, she won't sleep.

    Last night I walked in there at 9.30, after sending her to bed at 7.30 coz they were both so tired & taking pens out of her hand again. I turned on the light & there was MORE drawing on the wall & bed. I told her to get off her bed & made her sleep on the floor
    Told her, thats it, I'm taking your bed away like I said I would. I also told her that if she didn't wake up herself this morning, she would be staying home. Its their last day today. They're at the pool & waterslide for the day. Sure enough she was awake at 7.30. Probably had something to do with the phone ringing then though

    Mum is a self diagnoser IYKWIM. Maybe its this, maybe its that, read this. I've always looked into/read it, but it hasn't been the case.

    I would like to have her tested for ADD/ADHD, even though the school doesn't think she is. They just think she's a loud attention seeker. Always taling over everyone else to make sure the teacher hears her.

    She is sensitive to food colourings, so I'm careful with what I give her, but she's still a real handful.

    I don't know. I was going to add more about her, but my mind has just gone blank. Sleep deprivation will do that.

    I don't know what to do. The drawing on the walls is going too far & I don't know how the hell to stop it!!

    She has struggled alot with school. It was her teacher who thinks she may have Auditory & Visual processing disorders.
    She's having assessments done at school & we go to the gp on March 29, for a referral to a paed, or what ever else he offers us.

    I've googled alot, but there was part of a thread started by Lulu about SID/SPD that stuck out at me also.

    It seems she's a sensory seeker.

    Sensory seeking children look for extra sensory information from one or more senses which helps them remain alert. Sensory seekers are often 'on the go' and have difficulty settling for quieter activities. They may be excessively fidgety, put objects in their mouths, touch excessively, make noise for noise sake and seek out intense sensations like crashing their bodies into furniture or objects.
    She's very touchy feely. Drives me mad. I have DS & DD3 all over me & she tried to get in there too. She's a very 'in your space' kind of kid.
    She's over the top loud. Everyone comments on it. Some people seem to avoid us becase of it I know I avoid alot of things in life because of her
    She wears others out. She's just so busy & on the go all the time, noone else can keep up. Friends dance around the fact that they think she's a PITA.

    Anyway, thats our introduction for now. I guess I should've started a new thread, rather than putting it all in here...
    Last edited by ~clover~; March 3rd, 2011 at 08:59 PM.

  9. #9
    Registered User

    Dec 2005
    4,840

    Oh Skye

    I dont know what to say because Im still in the same boat right now. Well your probably actually ahead of me assessment wise because she goes to school and they will ensure she is assessed.

    Its rough though, when you dont know how to handle them or get through to their mind in a way that makes a difference. Its also mega hard when you have other kids to deal with; my most frustrating thing is that Ds3 is so much more 'with it' than Ds2. Which is silly because Ds2 is 3 and Ds3 is 2 at the end of this month. Yet he can understand commands, do what I ask and understand punishment 1000x better than Ds2 can.

    I'll be back later for an update on us. Its a long and boohoo one so I need to wait til the kids are napping.