Aspergers/Autism/Sensory Integration Chatter #4

[~clover~]

Thats what I worry about Freya. What if there's nothing there...

BBL, 3.30am & i neeeeeeeeeeeeeeeed sleep!

[Early Kids]

I had the same concerns... what if there is nothing there... what then? Am I crazy? Seeing things? All those months wasted on chasing up an assessment, how are we going to get help if he doesn't get a diagnosis. Sooo many questions and fears. I had those fears right up until I saw it on paper, the diagnosis, then I felt relief and sadness. Sad for my little boy who had to have a label just to get help (which STINKS!) and relief for the help that we will now get.

you'll get there guys, it's a long road but once you get to the top it does get a little easier.

[Inertia]

Skye, We are in the 'assessment stages' too, but there isn't a person I have spoken to who isn't utterly convinced that Princess is spectrum.

Something stuck out for me there. Princess is loud. All the time. They did hearing tests but her hearing is fine (and she can hear me whisper the word chocolate 3 rooms away!) but she talks so damned loud. One of the staff at the last school joked that Princess has two volumes - Loud and F***in Loud (yeah, charming, I know). There are a lot of things you have mentioned that remind me of princess.

Ignore the teachers and get a referral for a paed.



Freya: Good job on finding some assessments you can afford. Absolutely horrible that it costs so much to get help for children. We were very lucky that the school referred us to a paed that bulk billed and dealt in ASD.

but yeah, everything else has sky high costs and its just so hard to think there will ever be a time where people care that she gets help.

[~clover~]

Its the gp I think I'll have to push HA, teachers are supporting me 100%, but thankyou so much

I might go read up on aspergers. I don't know much about it. I know its on the autism spectrum, but don't get where it stands iykwim. She has no worries interacting with people, so haven't thought about it.

[Inertia]

Its kind of in the middle, Skye.

There is:
PDD-NOS -> Aspergers -> Autism

And on the teachers thing, I was referring to this part

I would like to have her tested for ADD/ADHD, even though the school doesn't think she is. They just think she's a loud attention seeker. Always taling over everyone else to make sure the teacher hears her.

Thats just rude! But I guess with all the troubles I have had with schools, I am cynical, lol.

Lulu posted a thread on Apsergers, which has been stickied. Worth having a look. Also her blog, Lulu and the Cyclone, has some info on Aspy, ADD and how her boy fit in on there. Just a pity she isn't here to help you out. Also you can check out my blog on princess - uniquetoo.blogspot. Been meaning to update it with the paed apptment but just been feeling very overwhelmed atm and now I just feel sick. =(

[~clover~]

Yeah, I'm feeling a bit ripped off TBH that Lulu isn't here, but her posts are & they've given me alot of info so far.
Haven't read her Cyclone blog yet. Didn't think of it. Will do though.

Now, I have to ask. Is her needing her shoe laces done to the same tightness & her hair in exactly the same spot on each side on her head, something I should remember too?
She's very particular & will cry til you fix it!

ETA - I see where you mean re teachers now. Sorry I wrote that post back in December & because it didn't all just happen recently I've forgotten those bits!

[Early Kids]

Hows everyone going?

I have my respite day today DSC have paid for the next month (one day a week) for day care for both the boys. I'm kinda lost today... what am I meant to do? My house is so clean, I made some jewellery lol

[~mamaspice~]

Its kind of in the middle, Skye.
There is:
PDD-NOS -> Aspergers -> Autism

Honey Aspen, what does PDD-NOS stand for?

Earlykids, hope you enjoyed your respite day

We have our first appointment for DD next month. I've been reading a book about Aspergers and DD definately shows some of the traits but not all of them. Just wondering what the PDD-NOS stands for and whether DD is more at that end of the spectrum.

[Early Kids]

PDD-NOS = Pervasive Developmental Disorder - Not Otherwise Specified, DS1 has that diagnosis. He didn't tick enough criteria for Autism, for PDD-NOS you don't need to tick as many boxes.