Aspergers/Autism/Sensory Integration Chatter #4

[Inertia]

Skye, We are in the 'assessment stages' too, but there isn't a person I have spoken to who isn't utterly convinced that Princess is spectrum.

Something stuck out for me there. Princess is loud. All the time. They did hearing tests but her hearing is fine (and she can hear me whisper the word chocolate 3 rooms away!) but she talks so damned loud. One of the staff at the last school joked that Princess has two volumes - Loud and F***in Loud (yeah, charming, I know). There are a lot of things you have mentioned that remind me of princess.

Ignore the teachers and get a referral for a paed.



Freya: Good job on finding some assessments you can afford. Absolutely horrible that it costs so much to get help for children. We were very lucky that the school referred us to a paed that bulk billed and dealt in ASD.

but yeah, everything else has sky high costs and its just so hard to think there will ever be a time where people care that she gets help.

[~clover~]

Its the gp I think I'll have to push HA, teachers are supporting me 100%, but thankyou so much

I might go read up on aspergers. I don't know much about it. I know its on the autism spectrum, but don't get where it stands iykwim. She has no worries interacting with people, so haven't thought about it.

[Inertia]

Its kind of in the middle, Skye.

There is:
PDD-NOS -> Aspergers -> Autism

And on the teachers thing, I was referring to this part

I would like to have her tested for ADD/ADHD, even though the school doesn't think she is. They just think she's a loud attention seeker. Always taling over everyone else to make sure the teacher hears her.

Thats just rude! But I guess with all the troubles I have had with schools, I am cynical, lol.

Lulu posted a thread on Apsergers, which has been stickied. Worth having a look. Also her blog, Lulu and the Cyclone, has some info on Aspy, ADD and how her boy fit in on there. Just a pity she isn't here to help you out. Also you can check out my blog on princess - uniquetoo.blogspot. Been meaning to update it with the paed apptment but just been feeling very overwhelmed atm and now I just feel sick. =(

[~clover~]

Yeah, I'm feeling a bit ripped off TBH that Lulu isn't here, but her posts are & they've given me alot of info so far.
Haven't read her Cyclone blog yet. Didn't think of it. Will do though.

Now, I have to ask. Is her needing her shoe laces done to the same tightness & her hair in exactly the same spot on each side on her head, something I should remember too?
She's very particular & will cry til you fix it!

ETA - I see where you mean re teachers now. Sorry I wrote that post back in December & because it didn't all just happen recently I've forgotten those bits!

[Early Kids]

Hows everyone going?

I have my respite day today DSC have paid for the next month (one day a week) for day care for both the boys. I'm kinda lost today... what am I meant to do? My house is so clean, I made some jewellery lol

[~mamaspice~]

Its kind of in the middle, Skye.
There is:
PDD-NOS -> Aspergers -> Autism

Honey Aspen, what does PDD-NOS stand for?

Earlykids, hope you enjoyed your respite day

We have our first appointment for DD next month. I've been reading a book about Aspergers and DD definately shows some of the traits but not all of them. Just wondering what the PDD-NOS stands for and whether DD is more at that end of the spectrum.

[Early Kids]

PDD-NOS = Pervasive Developmental Disorder - Not Otherwise Specified, DS1 has that diagnosis. He didn't tick enough criteria for Autism, for PDD-NOS you don't need to tick as many boxes.

[~mamaspice~]

Thanks early Kids will read into that.

We went to a friends for a play date today. her daughter is the same age as DD and we have all known each other since before our DD's were born. I was telling my friend that I'm getting DD seen to next month and she said that she would have never suspected that my DD had aspergers. But then i guess she does not see a lot of what happens at home. Was hair washing night tonight and DD absolutely cracked it. She HATES the sensation of her hair being wet. She screamed the whole time in the bath. I managed to calm her down afterwards by putting a Dora towell on her pillow (like what mummy does when she goes to bed with her hair a little bit wet, though not a Dora one, Lol)

[christy]

Sorry guys, its been so hard to come in here lately for me, I haven't felt right .

With Lu... My DD1 was diagnosed first, but she and Cyclone were 3 days apart and we started noticing the similarities in them from the time they were 6 months. DD1 is diagnosed with Autism only because her communication was lower... but other than that they are amazingly similar beings.

The thing with PDD-Nos, Asperger's or Autism is that it affects ALL the children differently, yes there is a check list, and yes its hard to figure out but all three are on the same spectrum. Think of it as a Rainbow... some are on the right side in the red, some are in the left in the purple, some are in the middle in yellow... but they are all on the same rainbow (this is how we explain it to our DD's). Matilda is in the yellow somewhere on the right hand side... she is considered high functioning autism but at the same place in the red would be Cyclone. Its all to do with IQ levels and communication abilities. DD1 refuses to communicate, she has a high IQ, medium social IQ but her communication abilities are quite low. She actually has a large vocabulary but is unable to put it together when the smallest amount of stress enters the picture. That is how she crossed the border from Asperger's to Autism. Does that make sense?

Personally, I won't worry too much about where on the spectrum they are, only that once you have a spectrum diagnosis, you can get started on getting help for them for survival in our world.

Over and over I've had people tell me that DD1 doesn't "look" Autistic. I can't believe that people think you should be able to see autism. Its not like she needs a walking frame, its that her brain processes things differently! I want to say back "oh thats funny, because I didn't think you looked ignorant?" instead I say "What does Autism look like to you?" If Matilda is around, I say "Yes well super heros like to hide their super powers in their day to day life".