thread: Aspergers/Autism/Sensory Integration Chatter #4

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  1. #1
    Registered User

    Jul 2008
    Balnarring, Vic
    1,900

    Going to make some calls today to get a second opinion, shouldn't be too hard as our gp said initially she would be happy to do another referral. In the meantime, we'll try and get in to EI, ot and speech.
    I think her theory was that it looked like he was parking the cars.

    I understand how it been such a long and hard road for all of you, I never really appreciated it.

    Sent from my iPhone using Tapatalk so forgive spelling mistakes

  2. #2
    Registered User

    Jun 2005
    USA
    3,991

    Sorry, I didn't mean to dismiss the lining up as I actually agree it's a spectrum thing. This was from a book about ASD, it was just trying to explain WHY they may do it and the reason they gave was to provide more visual stimulation. I dunno though, 'cause my son lines things up that are similar. Generally, the night garden cgaracters get lined up together, animals together, cars together. Did your son "drive" the cars and park them? I think that woman is projecting too much if she suggests lining up is parking. Glad you're getting a second opinion.

  3. #3
    BellyBelly Member

    Oct 2004
    Cairns QLD
    5,471

    Hey just a quick question.. What does everyone with older kids do regarding the easter bunny, santa, tooth fairy etc. Evan had a big carry on again tonight (happening so frequently atm ). Because DH had told him he spoke with the easter bunny who told him he doesn't bring toys, thats santa's job. Apparently there was a toy truck he seen in the shops... Anyway he wanted to know what the easter bunny looked like. When Dh tried to explain Evan lost it. Going on that DH was lying etc. Tried to get him to calm down & asked him what he thought he would look like etc. But The kids needs facts. But how on earth do you give facts on a lie?
    I never wanted the easter bunny/santa etc to actually become a lie. We have always avoided the questions (Which evan started with when he was about 4 in regards to santa) & just explained about the magic of believeing & how it makes it special. But He asked me the other week if the tooth fairy was real. Asked me outright. Said other kids at school told him its your mum & dad. I didn't want to tell him as I knew he would run straight in & tell the others. BUT I did my best to avoid answering & told him to ask Daddy (LOL) as he wasn't home & I assumed by the the time he was he would have forgot. But before I had a chance to talk to DH Evan had asked him & he said Yes the tooth fairy is real. Now he is telling him that YES the easter bunny is real..

    I really think we should sit down & tell all the kids (no way Evan could keep it tohim self) that it is us. I think he would be much happier with the truth. Its easier to process facts for him. But not these stories we can't back up or provide any real answers too.
    What do you all think?

  4. #4
    BellyBelly Member
    Add Yeddi on Facebook

    Aug 2010
    In a library somewhere...
    788

    That might be an idea Fiona. One of the biggest traits for ASD people is to take things very literally, and because of this they have a very hard time with fantasy/imaginative play that isn't simply an adaption of real things. Evan, I'm guessing, would know what a bunny looks like, how big they grow, what they do - the easter bunny (a very magically creature) would break all those "rules" to be an exception to everything he knows. Santa wouldn't be as much of an issue because he is just a man who dresses in a certain way and travels at certain times of the year with the particular job of delivering toys, you could most probably get away with the tooth fairy too being more human-like and performing more human-like jobs. However, if he is very literal, if you do manage to convince him in any of these things being real, it will be a huge (and I mean HUGE) issue when you finally have to let him know that they are not because you are changing the goal posts (which never goes down too well).

  5. #5
    BellyBelly Member

    Oct 2004
    Cairns QLD
    5,471

    just need to write it down. I am a total mess. Evan is at it again. I seriously don't think I have in me to do this.

    eta- back to expand a bit...
    We have had at least every day to some degree a melt down. If we go out, there is a melt down. If we stay home, there is a melt down. I can't handle it. Seriously I feel like if I get in the car I wont come back. Todays episode went on for over an hour. His room is completely trashed, every draw is thrown around the room, both mattresses off the bunks are on the floor. He threw a number of items out the front door. Continuously screaming at me & DH to get out of the house. I spent the entire time of it crying. Trying to vacuum the floor & just ignore it. I can not deal with it. I don't know how to deal with it, I feel horrible & like I should just leave.
    What started it? I said no more hiding eggs around the back yard.
    I just have no clue how I am going to handle this if it continues to escalate the way it has been over the last few days.

  6. #6
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    FJ Its very very hard, and yes we all go through the roller coaster.... with M school holidays is very hard, and always the added issue of anticipation is bad. Whenever some holiday that she loves, or a party or anything will encounter a meltdown. Mainly because her stress levels increase from anticipation, but in reaction to this, she can't handle changes to routine or changes in anything.... so school holidays, public holidays, changes, sugar.... etc etc etc... make life horrible. She had 3 meltdowns today. 3. I can't imagine going through that with a newborn...

    I imagine that Evan is very frustrated and confused with life. Maybe each morning if you give him an ideal routine, and make sure you say that it does all revolve around needs of the entire family.... then remind him what is happening next? Also, if he starts feeling stressed, or you see him getting frustrated, you can always do some OT things...

    Core work calms. Breathing calms. Make him blow up balloons, or do wheelbarrows, or sit ups, or squash him between two large cushions. Something to make him work that core and in turn help him calm down. I would do those things even when he isn't worked up, in order to help him calm down, put the fire out before the storm.

  7. #7
    BellyBelly Member
    Add Yeddi on Facebook

    Aug 2010
    In a library somewhere...
    788

    FJ - I'm sorry you're having a hard time at the moment. Hopefully you'll get a diagnosis and the help you need soon.

    I found an interesting video that I thought I'd share.

    Autism Now: Robert MacNeil Shares Grandson Nick's Story | PBS NewsHour | April 18, 2011 | PBS