If you can get your hands on developmental information, you could google it, or try to find some more valid information and send them a brochure... something like that. Is your nephew vaccinated? Surely they would ask developmental questions at check ups....
I found it really hard when people would tell me that there was something going on with Matilda. At first I read up about it and got so scared.... then we went on the waiting list for the developmental clinic at the Childrens Hospital. Matilda has sensory issues, but not Autism or Aspergers. At 2yrs old she was going through extreme behaviour like head banging, holding her breath until she passed out and self harm.. She had full on tantrums but now we understand sensory stuff its not as obvious.
I don't want to say "don't say anything" but be as gentle as you can. It can be a very hard thing to face, especially if you are in denial about it.
My DD, who is 6 was diagnosed with sensory processing disorder last year. I have just found the most fabulous OT right here where we live and ashlea has been having one on one sessions with her and its just so good.
As she gets older she is easier to deal with, about 2 - 3 years the sensory processing problems peaked big time and in turn i had a massaive melt down when i saw a peadiatrician that apparently had no clue at all and told her she was 'completely fine' after me spending an hour telling him all her 'quirks'
One month later she was diagnosed by a specialist within 10 minutes of being there.
She still struggles with the ups and downs of her nervous system being out of whack, constantly hyperactive and high strung, very emotional and gets very frustrated easily but she is coming along really well.
Christy, I also read The curious incident of the dog in the night time and LOVED it. My partner bought it for me and I was hooked within the first page, but it really does help to understand a different world and though pattern then what we know.
Hi guys, have been posting in the developmental delay thread up til now, great to see there is one for ASD related stuff too.
We got DS offical dx today. Aspergers (whcih is what we have though since 2yo and more so since he was 4yo) Bit of an anticlimax after the past year we have been through with crappy dr who didn't want to listen to us but we have met an awesome OT who specialises in sensory processing and as his behaviour worsned we got the school on board so today when we bombarded the dr with all our 'evidence' (not to mention DS was having a typical day rather than the awesome day he had last time we went to the paed) The dr did a huge backflip and went from a report that stated "mother and father believe he has Aspergers. He does not have this condition" to handling us all the forms we needed today and telling to get them back to him by Friday.
Anyway we embraced DS diagnoises as we can understand him so much better now we have 'some' understadning of where he is at. We are also doing the failsafe diet, anyone else? Haven't seen much improvement yet but we haven't fully committed yet so we'll wait and see.
Looking forward to chatting more with you all! good luck Christy with your appoint hope it goes well
Hi Sarah,
Am only new here, joined a while ago and havn't done much about it...I came accross your entry when I was looking at Belly Belly for things on Autism. My son is seeing the pediatrician for the first time on the 23rd of this month. He hasn't been 'quite right' for about 18 months but I just put it down to challenging behavour- it wasn't untill I read this book on Autism/Aspergers that I thought 'Bingo' thats it. From what everyone sais the process of getting a diagnosis is long and difficult and I am absolutely terrified as we are at our witts end now. I noticed you're in Townsville and I wondered what pediatrician you saw as we have recently moved here too. Also weather you had any advice for me. This is just so hard because we feel like we've been robbed of the son we thought we'd have and then the guilt sets in because I love him anyway but its just not what I expected and his behaviour makes it really hard to even like him some days but its not his fault!
Any help would be greatly appreciated
Lorin
Sorry have only just found this now. Yes we are in Townsville and we have tried a couple of paeds in town and haven't found any of them overwhemlingly helpful but I will try not to vent (unless you want to hear all the gory details :-P
We found the BEST help from our OT Gillian Balentyne, she did an assessment and wrote to our paed to tell him to pull his finger out. We have also had a lot of help from DS schoola and the early intervention team - how old is your son?
PM if you want contact details or just to catch up and have a chat - my home is quickly becoming a make shift OT therapy room so very ASD friendly (except for the undone housework of course)
Don't feel guilty about your feelings, we all have them! I pendulum every day from wanting to scream to just wanting to hug him to pieces. today he drew us a picture with real people eyes, mouth, arms and legs!!!! I was so excited! got to celebrate the small victories
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