Page 19 of 19 FirstFirst ... 9171819
Results 325 to 339 of 339

Thread: Aspergers/Autism/Sensory Integration Chatter

  1. #325
    MBP_Mum Guest

    Default

    It is a new tv series that is out and it was on autistic children, and at the beginning of the show hey where saying how the children seemed a lot different once they had MRI's etc done, as you ladies where saying in your previous posts. Just thought some one else may have watched it.


  2. #326

    Join Date
    Oct 2003
    Location
    Forestville NSW
    Posts
    9,031

    Default

    oh I haven't, but I'd love too see that...

  3. #327
    MBP_Mum Guest

    Default

    FAAAAAAAAAAAAARRRRRRRRRRRR OOOOOOOOOOUUUUUUUUUUUUTTTTTTTTTT

    K's appointment was next Friday, it has been postponed to the following week. I have moved heaven and earth to make sure i have made the appointment for the right day, and they ring up just to shuffle me around.


    I am so pee'ed off at the moment.

  4. #328

    Join Date
    Oct 2003
    Location
    Forestville NSW
    Posts
    9,031

    Default

    oh hun that sucks

  5. #329

    Join Date
    Dec 2005
    Location
    not with crazy people
    Posts
    8,045

    Default

    oh i wouldnt be happy about that!!!! Id be letting them know that too.

    I think im going to see if I can find a copy of this 11th hour show......ive gotta watch it now

  6. #330
    MBP_Mum Guest

    Default

    It wasn't a good outcome but the begining off it had me thinking of what you ladies where saying.

  7. #331

    Join Date
    Oct 2003
    Location
    Forestville NSW
    Posts
    9,031

    Default

    So! Quiet over here?

    LOL we are nearing the end of Autism Awareness Month and I've been amazed by how many people are totally unaware.

    However, we went to church last week and Matilda lost it, had a complete melt down. Pete carried her out to the creche which wasn't in use at that time. She was thrashing around physically and out of control. She kept trying to run... and I was trying to hold onto her tightly and she scratched my eye, then DH took over and she slipped out. A mum with a boy on the spectrum somewhere came and grabbed her and walked her outside in a bear hug. I caught my breath, and DH took care of Jovie. Then as I was about to walk out another mum who happens to be an OT who works with our OT came in and took over and started getting her into the swings etc... so I sat down for a few minutes and tried not to be terribly horrified.... So I hear her calming down so I run in and grab her in a huge bear hug and Matilda was crying... she said to me "Mummy I need some crunchy noodles" and it was exactly what she needed.

    The OT said to me "Whew... I have never been with a child who is in full meltdown... never..... and this was intense, I'm so glad you let me help. I think you and Pete are amazing parents" She also said "I've read about things like this, I've studied things like this, and Ive heard parents talk about this, but I've never seen it... or been there through it"

    I've never had someone say to me that I am an amazing parent at the end of a melt down, I've only been judged before for my crap parenting... and here was someone who told me I was amazing! Someone who has studied it, so I hope she's gained some more wisdom in dealing with these super kids now. I hope she's gained a life lesson as well. And I am eternally grateful for boosting my parenting esteem......

  8. #332

    Join Date
    Jul 2006
    Location
    Brisbane
    Posts
    6,689

    Default

    Oh Christy, that's so great to hear that you have had some well deserved validation. You do a fantastic job.

    J's assessments start next week. I think I'm ready for it - some things have improved since we booked them in so hopefully that's a good sign.

  9. #333

    Join Date
    Mar 2006
    Location
    Getting to know Brisbane all over again
    Posts
    2,071

    Default

    Christy - what a huge day for you and what a bright and shining light in the midst of it all to have that validation to confirm what all of here already know - you are a fantastic mum!!!

    How enlightening that so many of these people that work with our kids have never witnised what we live with each day. It really explains why they say and do the things they do.

    Manta ray - good luck with the assessments next week!

    Xander spent part of the day yesterday under a desk for calling out in class - God how I hate his teacher! He can't understand why he can't say all the answers when he knows them and they are right. It frustrates me so much when his teacher has so much at her disposal in terms of people wanting to help, resources and ideas and yet she won't participate. Still trying to write "the letter" to the families in his class - a task made harder by the fact that his teacher would prefer us to keep it as short as possible (about a third of a page???)

  10. #334

    Join Date
    Dec 2005
    Location
    not with crazy people
    Posts
    8,045

    Default

    OH bloody Nora Chirsty hon im sitting here with tears stinging my eye's.....poor sausage...thank god for your angels to have been there

    Must have been the weekend for it :rolleye:

    We had a family break at the inlaws on the weekend....all was ok.....Indian lunch which I knew W would touch...SIL telling me it was alirght as she had bags of chips in the boot of her car for him..(WTF thats NOT lunch) but I drove to the supermarket and got bread, devon and cheese for sanga's for him and his favourite, milo yogurts.

    Then on the sunday, SIL comes to babysit other SIL (she is disabled) and it was just to much for W. He had such a tummy ache and over everything. Nephew can be nasty when we are not in ear shot (eg non sharing and narky) so W gets more upset......thank god we went to Sammi's for lunch and it helped .....hench why the woman will play a very important role in his life soon.

    Ive been giving him daily fixes of incremin again which has helped settle him down but OMG he thinks swearing is funny...and fart jokes :rolleye: I do to but how can I tell him their not for school

    MR - YAY for J's testing starting......hope that it will bring some light and help for you guys

    Sarah - WTF!!!!!!! have you gone to the principal about this moron???? Can you get him change dout of her class? What a wench!!!!!

    Thank god tomorrow is friday sleepin saturday morning for him

  11. #335
    MBP_Mum Guest

    Default

    Hi all sorry this is quick but it has been a hectic week,
    Tomorrow is assessment day, so we will know what path we will be taking.

    A friend of a friend has a son with autism, she was sick of explaining to people what was wrong with her son. So she had cards printed up and on it it said something along the lines of
    My son has autism, instead of judging him learn about autism.
    Apparently she gave this to many people who sneered at her whislt out with her son. She walks up hands them a card and quietly walks away again. What a brave soul she must be.

    Will keep you all posted, hoping we get some news tomorrow.

    Thanks ladies chat soon xox

  12. #336

    Join Date
    Mar 2006
    Location
    Getting to know Brisbane all over again
    Posts
    2,071

    Default

    MBP mum - good luck with your assessments too

    Maz - hoping to catch up with his teacher tomorrow - she's never bloody there! But it's like talking to a freaking brick wall - I think I will have more luck with learning support teacher she have made an appointment with her just want to move to Brissie and find him a new school altogether!

  13. #337

    Join Date
    Oct 2003
    Location
    Forestville NSW
    Posts
    9,031

    Default

    MBP we thought we'd get Matilda a T-shirt when we get a diagnosis that says "I have Asperger's, my mum needs chocolate, not advice" hehehehe. Goodluck with assessments.

    Sarah... as a teacher yourself you must be so angry and frustrated.

    Mel I hope that the start of everything doesn't leave you too frustrated. J is an amazing soul and it would be so lovely for you to be able to unlock some of those things or understand some quirks better.

    Maz :hugs: family heh? I'm so glad your soul sister can help you. I am so glad to be here because I feel like I have people around me now who don't judge but who are helping.


    I have one friend whose children are hard to socialise with for us, and who is often saying to me "but my kids need to be themselves with Matilda... not have to change to play with her" whenever M has a meltdown because they don't share or understand something. I feel like saying "don't we as adults adjust our behaviour for who we are around, do we act the same with babies as we do with a groupd of girls on a night out (wait.. whats that again?) Why shouldn't we teach our children to start now?"

  14. #338

    Join Date
    Dec 2005
    Location
    not with crazy people
    Posts
    8,045

    Default

    Id bel ost without my soul sister Chrissy...she really doesnt realise how much she means to this family I dont think .

    Im also thankful that we can come in here and download ourselves.......know one knows the lengths and pains we go to better then us and its so good to have the understanding and empathy, with actually experienced it ourselves

    I bought W a tshirt in his red faze (yep we had a red faze) that says - someday I'll be your boss...his career pee'd herself the first time she saw it

    Why is it that atleast one monring a week, Jed feels the urge to yell and make W feel like crap before he goes to school

    MBP - Good luck today honey I'll be thinking of you

    Sarah - can I come and tell the teacher off with ya thinking of you too

    Best take the boys to school before W lets loose on his little sister who keeps yelling...let me in your room NOW!!!

  15. #339

    Join Date
    Nov 2004
    Location
    Chasing Daylight...
    Posts
    2,091

    Default

    Here's the new thread everyone

Page 19 of 19 FirstFirst ... 9171819

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •