thread: Aspergers/Autism/Sensory Integration Chatter

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  1. #1

    Dec 2005
    not with crazy people
    8,023

    As always Belly Belly to the rescue! Thankyou Christy for starting this.

    As she got older the behaviours changed ( for example she is now fine with coping with shopping centres etc where as a baby/small child I would more often abort the whole grocery expedition as it was fraught with screaming, and dreadful tantrums).
    **** I feel like im treading on the same path with you hon

    ok my turn

    I fell pg with Wilhelm as soon as Jed and i planned to have another baby. I knew that something was different from word go and often quered the midwive and doctors at my AN appointments who told me everything was alright whilst rolling their eyes as they turned away. Whilst I had heaps of movement with Nikolaus, I had nothing with Wilhelm and was told he was just a peacefull baby. Even my day knew something wasnt right when I told him what I was feeling. Anyway I had the perfect baby when he was born...fair, peach complexion...slept like an angel at the hospital..then BANG I couldnt get this kid to stop screaming. the more I tried to do console him with cuddles and affection the more he screamed. I tried to BF him and he scream...refussing to latch on. I cam enear him he screamed. He did start smiling and reakognising me at about 4 months but when 6 months hit it was like someone has switched off the lights on my little boy and hit him in the face with a shovel. He just lay there, day after day not moving. He failed to crawl or sit up by the time his first birthday had come and I was a tmy wits end.

    I remember going to a richard Isanhower lecture at the local school and I sat there next to one of my friends weeping. I stood there infront of 200 people (something Im not comfortable with) and told Richard my concerns and how I felt through my pg....Richard told me I was a very intuned mum and that I should seek help as soon as possible. Wilhelm was 14 months old. I started getting help,seeking resources the very next day.
    iI to couldnt drive into the supermarket carpark without Wilhelm having a fit and screaming that bad that I would end up crying, turing around and just going home. He would only stop as soon as we left the car park. I became a recluse and felt very much alone as none of my friends understood the heartache taht I was having..to watch my son go through these horrific things that were so stressfull for him..I was also sick of my friends and family telling me it was a stage he was going through..I ended up turning my back on many of them for their lack of support.

    i gave up returning to work as WIlhelm needed help with many everyday situations and things that I felt I needed to be there for my child...i felt and still do to this day that I have failed him as a mum becasue he is not classed as the 'norm'. I cry when I see other kids treating him different or when a situation distresses him...but I cant always step in and I have to allow him to feel the world as it is.

    it wasnt until Wilhelm has his formal diagnosise at 4 1/2 that I finally allowed myself to start grieving the child that Wilhelm should have been. I still find myself crying in frustration and anger. Angry at him at times because his lack of understanding. Angry at the world because I feel my little boy has lost his childhood and is more an adult than me at times. Frustration at the lack of support locally from departments and frustration at family members for not understanding Wilhelm for who he is...not what he is.

    Wilhelm has changed so much over the last year since starting school. I have headbutted with the teacher a few times as she has treated and spoken to me as a student and that just doesnt rub well with me. I am his mother and I think I know my son better then anyone....I got payback though when she didnt listen to me and he lashed out badly. i ofcourse delt with the after marth at home...she clocked of at 3.30..need I say more.

    Wilhlem has some funny traits...

    Only eats white food
    Wont eat saucey products
    Cant wear long sleeves becasue they are to itchy
    Wears a hat most of the time
    Watches the trailers on movies
    HATES dogs and has fallen in love with our cat after 4 years
    Tells me he makes me grumpy when he's naughty and vise a versa
    reads better then an adult - spelling is unreal
    Has a photograph memory

    Most of all....he tells me he loves me now and gives me a kiss. I dont know if he truely understands the meaning of the word but Id ont care..they are the most precious words that I have ever heard in my life.

    Thanks girls..ah feels good to have a thread to come to were everone understands

  2. #2
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    it wasnt until Wilhelm has his formal diagnosise at 4 1/2 that I finally allowed myself to start grieving the child that Wilhelm should have been. I still find myself crying in frustration and anger. Angry at him at times because his lack of understanding. Angry at the world because I feel my little boy has lost his childhood and is more an adult than me at times. Frustration at the lack of support locally from departments and frustration at family members for not understanding Wilhelm for who he is...not what he is.
    God Matilda is almost 4 1/2... I'm feeling this today. I know I have to grieve the child Matilda should have been, but I almost can't go there for fear of complete break down. I have my melt downs over it, but I'm worried that I can't come back from that. I'm sitting here crying thinking of it & I don't want to let go... but I know I have too. I know I have to do this. I think I will need a few days off for it.

  3. #3

    Dec 2005
    not with crazy people
    8,023

    Honey Im still having melt downs and he's 6 1/2 now. I could have strung him up and feed his to the crows today because I became so sick and tired of him asking me how many more sleeps until school again. Ihave the worst tension head ache from him and tonight I just let rip int he shower and bawled my eyes out. I feel so much better afterwards.
    in all honesty..i think the first step to helping our kids is to get the grieving started. Even though I knew something was wrong...i was still holding onto that hope that Wilhelm was a normal child and that I was the one that had the disability.

    Just breath babe and take one little step at a time. It wont happen overnight and sometimes its 2 steps forward, one step back..but every little inch forward in forward

  4. #4
    Life Subscriber

    Jul 2006
    Brisbane
    6,683

    Just Christy. I wish there was something I could say or do hun.

  5. #5
    Registered User

    Nov 2004
    Chasing Daylight...
    2,034

    Drat, just lost my post. Anway, the short version: what you're feeling is natural, don't fight it, progress through it. Courage, strength and perseverance.... three keys to hope. And finally, my heart goes out to you Christy. I understand the turmoil - I have walked that particular road myself over the past 7 years.

  6. #6
    Registered User

    Jan 2005
    Down by the ocean
    6,110

    Christy

    It must be so hard to not have a clear picture of what is going on with Matilda. She is a beautiful and complex child. I think it is hard for Drs sometimes to make a formal diagnosis because they are all so different, though cut from a similar cloth.

  7. #7
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    oh thank you all!!! Its so helpful to be allowed to feel this way. Maybe not today while I have 2 girls.... but maybe on the weekend I'll let myself go.

    This morning Matilda came in & woke me up and asked me around 15 times if she was going to Montessori.... She is supposed too, but she's coughing so I'm tossing up. She NEEDS to know.