thread: Aspergers/Autism/Sensory Integration Chatter

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  1. #1

    Dec 2005
    not with crazy people
    8,023

    that sound perfect!!!! will google it tonight when the kids are in bed...I dont want them getting to excited about it. thanks so much babe..your a friggen gem!

  2. #2
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    I've PM'd you the website sweets...

  3. #3

    Dec 2005
    not with crazy people
    8,023

    thankshon...will go right now (while kids are quiet)..will be heading home through Newcastle for a few days afterwards so will defently have to catch up. We can compare notes in person

  4. #4
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    One of the best things we did with the move was do a map for Matilda... so like a page for every 5 hours of driving or day etc... We had pictures of the places we were staying in it and when we got there she was running around showing us where things were and everytime we stopped for petrol she wanted to see where it was on the map.

    I did it a month before we left and read it to her every other night or so. She took it to Montessori for show n' tell (and it was a bodge job... I printed out photos and pasted them in my "story" and then put contact on every page so they couldn't be ripped off etc. So it truely was bodgy. I had every day of the trip mentioned from the packing of boxes and saying goodbye to the first week of being here. Funny that everything fell apart with Matilda after our first week. Its probably because the book finished!!!

  5. #5
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    *breath in Breath out* my little mantra for life atm.... just remember to keep breathing....

    Matilda injured her neck Wednesday arvo right before we went to the paed. When we got there she had full movement so he didn't worry. She hurt it jumping off the top bunk... yep thats right.... anyway so I took her to the physio on Thursday because she is holding her head crooked and saying it hurt. When I got there they told me to keep her quiet for a few days. OMG are they serious??? I laughed and said "sure" then today we went back because we have to go daily for 3 days. So anyway... we see a different physio today. One that I used to see 8 years ago when we lived here before. She's had 2 children since then & was asking about Matilda... I had to explain that Matilda seeks vestibular sensory experiences and wants to fall and jump and get dizzy and she seeks it all the time. She then was trying to work on Matilda's neck which was like pulling teeth without a GA. At the end she said to me "you know this isn't normal behaviour? Don't you do dog behaviour?? You should know..." I burst into tears "Yes, I know this isn't normal behaviour, yes I do work in animal behaviour, yes I know that I should be doing something about it... I have tried, I have kicked, I have screamed and I have been put aside and been told that it is bad parenting and I'm over it. Someone has to start listening to me, but no one is at the moment." She just stared at me. She said "what about Aspect?" my answer "I've phoned, I've left messages, I've emailed and I've even gone in person and knocked on the door (its only 500m from my new house!!)" She just stared at me again and said "You must be exhausted." and shook her head, jumped up and gave Matilda a stamp and said she wasn't allowed to scream until Christmas. If only wishes came true!!!

  6. #6

    Dec 2005
    not with crazy people
    8,023

    WTF!!!!

    Really Christy 3 firm smacks for not putting her in a straight jacket!!! Sorry babe but what the hell do these people expect from you guys!!! GGRRRRRRR WTF is dog behaviour?? She's not an animal she's a child thats a little lost at the moment !!!!! ahahahahaha

    maybe you should have asked her WHAT was appropriate behaviour then seeing you have no idea

    big hugs babe!

  7. #7
    Life Subscriber

    Jul 2006
    Brisbane
    6,683

    Christy hun, I have been following your posts but really have not had any words to express how I feel. I still don't. I am so sorry that you are going through this, and that you are not getting more help. The OT sounds really good, but you need so much more support than that. I can't even imagine how you are coping at all. I really hope something can be done to get things somewhat on track for you soon. In the meantime, I admire how strong and patient you are. I can tell you now, you are doing a bucket load better than I would be.

    Maz, Saram and everyone else - I wish you all the best with the school holidays and hope that the New Year brings you good things.

    I finally rang the Mater to bring DS's assessment forward, but I really feel like a fraud, as I don't deal with anything like what you guys do. He certainly has issues, but they are different, and far easier to cope with on a daily basis. It has also occurred to me that DS2 seems to be showing some warning signs too - he tanties all the time, seems to have sensory issues with clothing, and is pretty hit and miss as to whether he will tolerate being touched. But I guess one step at a time. DS1 for now.

    to you all.