Dragonbub: Thanks for the info, it's nice knowing that people can and do live with RP. I really hope little Caden has no troubles later in life.

Caitlansmum: How are things going with Caitlan?

Joels Girl: How did everything go with Mish's appt, if you don't mind me asking? I hate to sound ignorant but I thought Glacouma only affected older people, just goes to show how many different things can and do go wrong with children. So sad sometimes when I think about it all. I haven't used Vision Australia services purely because Bryce's sight is good for the moment, do they have info on their website that might be helpful to you?

Bryce was due to have Electrophysiology (lights flashed into his eyes while sedated) last Friday but he had diarrohea on the day and they wouldn't admit him into the hospital ward. We have been rebooked in for the 2nd July so as long as he's well on the day they will do the procedure. Can't wait because then we will be more certain of which Syndrome he has.

Hope everyone is having a good week!