Hi Caitlinsmum,

I have a son, Thomas, with phpv and micorphlamia in his right eye. Thomas is now 8 years old, and doing so well, people forget he is blind in one eye.

We live in Melbourne and go to the Royal Children's for his annual eye check-ups. He is supposed to wear a scleral shell over his eye, to stretch the socket but he refuses, so I haven't been too successful with that.

I would be appy to talk more with you, if you need. Also there is a great yahoo goup for phpv (search under health ).

I'm not sure how old Caitlin is, but I remember Tom had a head tilt before he started crawling - once he could move it disappoeared. The reason they develop it is, it gives them a wider view of the world. Close one eye and look around, then tilt your head and you'll see what I mean! Babies are so clever!!!

Good luck with the surgery and take care

Sophie.