Does anyone know of anyone in my situation?? please!

[WannaBMum]

Hi All,
I wasn't sure what area I should post this in so I'm sorry if I'm in the wrong spot!

I was 12wks on Tuesday with my third preganacy (I have a beautiful, perfect & healthy 23mnths old & m/c in june this yr), yesterday (Wed19th) I had my 12 wk Ultrasound and baby was active and everything fine, when it was almost finished I noticed that they guy doing it (Brendon) was focusing alot on the feet and was poking my tummy to make baby more, I asked if there was a problem and he said I just need to see something.

Ok so I'm not going to write every detail of what happened cause i'd be here forever but the short of it is....Dr came in to have a look and did an internal ultrasound and they have told me that both of my babies legs aren't growing properly and its some sore of bone problem.
The bone from hip to knee is fine and good size but then from knee to feet is too small and baby isn't stretching like it should be, not kicking or anything.

So there conclusion at this stage is that they will not grow in proportion with the rest my baby's body and it will not walk.
Of course at this stage DH and i both broke down (and may i add that i haven't stopped crying since).

They have told me to go back in 3wks when I'm 15wks and they're going to do another heap of scans in hoping that they will see things more clearly as they baby gets bigger, but they're pretty much said thats how it is and now its our decision at to what we do next, they're told us to think about what our thoughts are on special needs babies/children etc.

This is going to be the longest 3wks what of my life, but I just feel so upset and in a way disappointed, obviously not towards my baby, but its just so hard to come to terms with that heartbreaking news, its one of those things that u don't think will ever happen to u.

So sorry its long I just needed to get it off my chest, when i m/c earlier this yr i posted on here and the support i rec'd was amazing and something i will never forget.

If anyone has heard of anything similar to my case I would love the here good or babd.
Thanks everyone for listening.

WannaBMum :-(

[Trillian]

I'm so sorry that you've had this thrust upon you I can't imagine how much you have to think about right now. I hope that the next scan is better and it shows that nothing is wrong with you little one.

[satya]

Sometimes scans can be wrong. I hope the more thorough testing gives you a better result. Try to keep positive until you get through the next lot of testing.

[~Kim~]

I've been thinking about your post since I read it a while ago. I wish I could give some great advice.
Did they give you a diagnosis? Or refer you to someone who might be able to give you some advice?
I used to work up at the kids hossy at Westmead and they have all sorts of fantastic referral and information services available.
Be gentle with yourselves the next few weeks

[DaintreeDream]

It is hard to hear that there is something wrong with your bubba and so early in your pregnancy. All I can suggest is to get a second opinion. I know from personal experience that they can get it so wrong. It was strongly recommended to me from many 'specialists' to abort my DD, I went against all they said as I felt ready to bring up a special needs baby. When she was born after an Amnio and fortnightly scans throughout my pregnancy and constantly being told of problems with my baby I delivered a little girl that yes had problems however none of the problems that they detected, the problems she had were not picked up on any ultrasound or test. Yes she is classified as special needs however it is only because of feeding issues not because of physical, intellectual and mental abnormalities that they suggested.

I wish you the best of luck with your next ultrasound, babies can change so much in such a short space of time, I hope that everything works out for the best and just know that there is so much support out there if your bubba does have special needs and they can do so much to help these babies lead normal lives. When a Dr says your baby will never do this... I make it my mission to prove them wrong, and I haven't failed yet.

Although my DD case is different to yours feel free to PM me any time if you need to talk/vent.

Deanne.

[alioops]

I have replied to your other thread hun.

I have to agree with Matilda's Mummy though, So many SN children prove doctors and other medicos wrong all the time. Good Luck hun!!

[maz]

U/s are known to be wrong honey (speaking from experience)..please oh please dont take this u/s that you had as gospil.

I can understand your tears and pain in what you were told. No-one ever expects the baby they are carrying to have anything wrong with them. A baby is something pure...made from love to utter perfection. If something is not correct then its terrifying.

Try looking at a positive hon as hard as it is at the moment....he'll have (sorry I am assuming sex here) a heart to beat, a brain to think with and a face to take your breath away. You'll hold him in your arms and be taken away with the love that is the bond between the 2 of you.

Dont let the idea of a special needs child scare you....their given to extra special mummies

[WannaBMum]

Thanks heaps for u words Trillian & Satya xxx

[WannaBMum]

Hi Kim,
Thanks for ur words,
No I was'n't given a diagnosis, we asked them what the condition is called or anything that I may be able to research but she said at this stage there isn't really anything she can say, and that more that likely the condition wouldn't be 100% known until the baby is born, should we decide to take that path.
Also nothing has been offered to me in the way of counselling, I think when i go back at 15wks they will take if from there.
Their biggest concern was that as I'm still on 12wks the baby is small and they couldn't see everything as clearly as they would have liked so they're hoping that in the 3wks it sill be bigger so it will show more up on the testing.

thanks xxx

[WannaBMum]

Thank u Matilda's mum - u have given me a lot to think about, and u sound like a very strong person, I praise u for all that u have done in ur journey with ur beautiful little girl and she is so luck to have u as her mummy!!!

thanks again xxx

[WannaBMum]

Thank you alioops, maz & mis_tree,

Your words all mean so much to us, and we have so much to think about, but the best part is knowing that u have all taken the time to read our thread and write to us.
We both know that everyone has different opinions and they are all taken on board, but we are also both aware that at then end of day it is the hardest decision of our lives so far we've had to make and it's going to be one that we think long and hard about.

thanks everyone xxx

[leesha]

What evryone else has posted on here for you is great advice!!
We also were given worst case senario from our ultrasounds and I had an amnio to rule out other awful things...at 22 weeks I was given the option to terminate which was heart wrenching! We decided against that thank god!!!
5 months ago we had a beautiful healthy little boy who like matilda's mummy is classed as special needs but only due to having a cleft lip. His palate is all in tact and nothing else that we were expecting is wrong!!!
So I can sympahthise with you and my happy thoughts are coming your way....try not to worry till you get more scans and advice and research research research what you can to get your head around things!!!
Ultrasounds aren't the be all and end all.....remember babies are born all the time with problems that aren't detected in utero....you will be more prepared IF it is a serious problem!!
xoxoxoxo

[WannaBMum]

Thank you Leisha & everyone,
It's been a few days since I've posted and I've just been taking the time to get my head around everything, well try at least.
I think I have gotten over the initial shock and now and just considering every option depending on the outcome of the next ultrasound in 2wks and 1day (not that i'm counting :-P)
And all the words of everyone writing to me has really mad eme think even harder. I have read all of the messages to wonderful husband and he can't believe how lovely complete strangers are, so thank you from him and me.
I just thank god everyday that i have already been blessed with our beautiful son Brock and whatever the outcome is he brightens up our world.
So thanks again and I will update again soon.
xxx

[smiles4u]

How beautifully said Maz ... there is such heartfelt truth right there !!!

Thinking of you WannaBMum !!!!

[DaintreeDream]

Our thoughts are with you over these next two weeks. We are always here if you need us. Please do let us know how you go at the next ultrasound, I have my fingers crossed for you.

Dont let the idea of a special needs child scare you....their given to extra special mummies

I believe this also Maz

Deanne.

[leesha]

[QUOTE=MatildasMummy;1530209] Our thoughts are with you over these next two weeks. We are always here if you need us. Please do let us know how you go at the next ultrasound, I have my fingers crossed for you.

I believe this also Maz





Yep if you feel up to it then definately let us know how your ultrasound goes because you are in all our thoughts!
We are always here to listen or give advice!!!
Good luck
xoxoxoxoxooxxo

[squidipa]

oh my goodness, i am so sorry especially having to wait that long to find out. What a burden, i wish i could make it better.
When i had my scans and they told me the ratio for downs... i had 1 in 311 chance and i was sooooo upset and concerned even now with bubs 4 months i am only now excepting he is healthy and fine. Altho he has only gown 6cm's since birth we are running all sorts of tests now. The dr thinks he may have a bone forming problem. We are just rulling things out. I get my results of xrays in 1.5 weeks and he still needs a second round of bloods taken. I dont think anything that i can share or say can make u feel any better but i hope u get answers soon!!

[Macca79]

I can't really offer any advice as I have no experience in this matter but I just wanted to offer you . I hope things turn out ok for you, bubs and DH.