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Thread: Felix's Chronic Interstatial Pneumonitis

  1. #19
    katanya Guest

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    Felix is much better today breathing rate has dropped, but still is very chesty, he is doing well though..

    We had our dietician appoint..he has gained 180 ( was meant to be a minimum of 200 grams for the 5 weeks) as he was sick she was fine with it..we dicussed the whole sitution and while he's not loading it one she is happy with things ATM, we are stilling going to seeing regularly just to monitor him..but at this stage things are looking okay..

    Bought him a pair of 00 pants today at an op shop to wear as 3/4 pants..the waist is perefct for him..LOL..another mother there with a VERY big baby who was 11 months nearly feel over when she heard he was 14 months..her baby was literally double Felix's size (not height but weight) never mind..he's certainly not going to be in any obesity clinics in the the near future


  2. #20

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    That's good news about Felix's weight gain Katanya. And it's great to hear he's feeling better. Hope you have a relaxing weekend

  3. #21

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    Katanya glad to hear that Felix is feeling better. I know what you mean about being apprehensive about the childcare etc. I guess the thing is that we can't keep them wrapped up forever. What the hell are we going to do when they go to school? They have to go. I mean mentally, socially and emotionally they need interaction with other kids and adults.

    Its great that he is putting on weight. And LOL at not needing to go to any obesity clinics. Thats what we say. LOL!

  4. #22
    katanya Guest

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    Yeah Shannon I have to agree with you there, I am definately not a wrap in cotton wool person AT all, but in his case he has no weight to lose and getting chesty coughy things just end up bad for him..I am not sure what his specialist will say 8-[..As far as Felix the person with out the respiratory condition he will love it ..he is SUCH a social child..Like ou have aid I will juts try him and see how we go, we can only try, and it is only money if we pull him out..otherwise if all goes well I will have a day to myself..

    Hi pants are quite amazing yep still in 00 with room to breathe..not length though..I mostly put him in 0's because he needs the length of those..

    ..I had to laugh today, I took he and the girl I work with to Australia Zoo(ala Steve Irwin zoo, we have season tickets) and he walked up to an elephant on his own and fed it..everyone when goo ga over it..the photographer captured it and she said the owner of the elephant wanted a copy of it..to show how far the elephant had come..she thought Felix was about 9 months old and was a little disapointed when i told her he was 14 months..she said but he's so tiny! Wish I could share the elephant picture it's super cute..I have an enlargement!

  5. #23
    *Yvette* Guest

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    Hi Katanya. Yay for the weight gain & glad Felix is feeling better. Hope the childcare works out, did I read yesterday you were thinking of family day care? That could be a really good option.

    Australia zoo sounds great, I'd love to see the elephant picture!

  6. #24
    katanya Guest

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    Well it's been a long time without anything scary happening, and I guess it was unfortunately envitable that we didn't through winter without a hospital visit..which happened yesterday

    Poor little mite has something, still not sure what it is but has high temps and high breathing rate (60 breaths pr minute) double his usual 30..he had been building up to that rate from Sunday.

    I tried to contact his specialist on the phone, also failed to talk to his paed so they suggested bring him into emergency..his temp was 39.5 when we got there and breathing rate high..

    We had the obligatory tests (chest xray, mucus vacuum) and nothing showing pneumonia, but they suggested that he stay overnight him having his condition..

    we both had the worst night sleep, he either fed compulsively or screamed and had high fevers..as morning came he perked a little and the paed said it would probably take 12-24 hors for him to see it's worst if it was going to, and since we have the oxygen and panadol at home which is all they were doing for him i decided to take him home and will take him back if his breathing gets worse or any other symptoms develop...

    The peadiatric consulant(his usual one is away) I talked to today asked me if he'd ever seen a immunologist specialist ,in part of the investigations, and I explained because things were going well until now the respiratory team have just been looking after him, and if there were other symptoms they would pursue other testing..

    It's kind of my worst fear that there is reason to do more testing and see an immuniologist as that would mean a whole lot scarier position he would be in healthwise..autoimmune conditions attacke not just one organ like the lungs but usually several..anyhow I am not going to worry because we are not at the road.

    He is currently sleeping, and temp is down again after a dose of panadol. he has been vomiting abit too, not sure whether it's due to the temps or him having being crying so mch the last 24 hours..I am trying to get myself to have a sleep too as if he does get worse I won't get much sleep tonight again..

    Please cross your fingers everyone that we've seen the worst I am not keen on seeing him like he was last night again

  7. #25

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    Oh Katanya, huge Let us know how things go. Thinking of you both.

    Take care.

  8. #26

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    Katanya... here I was very glad that you hadn't posted in this thread for sooo long!

    Poor little Felix! We'll certainly be [-o< for him, especially through the night as that always seems to be the worst time for littlies.

  9. #27
    Debbie Lee Guest

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    Katanya - my fingers are crossed for you and Felix that last night was the worst of it. How scary for you! You are in my thoughts, matey. I hope you can catch up on some sleep. :hugs:

  10. #28

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    Katanya, I hope Felix improves quickly. What a bummer to have this set-back just as things were going so well.

  11. #29

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    Katanya I hope Felix is doing better this morning. Its such a shame that this has happened, as he was doing so well. A stay in hospital...Bummer! I hope they don't think he needs more poking and prodding. But like you said there is no point in worrying about something that has yet to happen.

    I wonder if all that crying and screaming actually did wonders for the breathing. We have been told that a good cry or laughter help to open the lungs. Not that we want out little ones crying and screaming of course.LOL!

  12. #30
    katanya Guest

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    thanks for all your thoughts guys, we are still home but he's not a very well bunny, I have tossed up talking him back a few times and then deiced to wait alittle bit..he is sleeping soundly at the moment, as he did last night so I am feeling much better...

    Unfortunately it seems he could have gastro as well as he has had the runs and has vomitted everytime I've been giving him either panadol or nurofen(could be psychological though )..I ran the paed ward and they sugested the nurofen as well to get the temps down, but as he is still breastfeeding well and his breathing hasn't decreased I am staying put..I thought the runny poos might be the amount of panadol but afraid not
    His temp still rises to above 39 without panadol, if things aren't better I will take him in tomorrow to get him looked at again..it's just that I know they'll poke and prod him if I take him back so I'm trying to resolve stuff here as much as possible..

    Anyhow fingers crossed, he is feel VERY skinny again, I am petrified all this has stripped the tiny bit of weight we worked so hard to get on

  13. #31

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    katanya

    Thinking of you this weekend and hope things work out for you real soon.

  14. #32

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    Katanya, sorry to hear of all Felix's trouble. I hope by now he is on the mend. All the best, I will be thinking of you and sending him get well wishes xoxo

  15. #33
    katanya Guest

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    Well turns out he has a new strain of Flu, but they usually take 5 days to get over and he has been febrile for 5 days, and his chest is not sounding good..

    Took him back to the hospital today where a really great peadiatrician saw him, she saw that he was still breastfeeding and she told me "oh I'm sure you've been told this before but that's the best thing for him" I wanted to hug her..actually no I don't hear it at all I want to say, I said to her instead, I want to keep breastfeeding him asl ong as possible for the antibodies..and the comfort factor is always great..

    Anyhow despite the FluVAC this "new strain" of flu has hit him hard, the pead asked what I'd like to do, I told her that if they weren't going to give him anything else I'd take him home again, she said i should bring him back in the morning to be reviewed again to make sure everything is not worsening..

    Anyhow I am happy to keep him home, and he is just sleeping it all off, hopefully we've reached the wosrt of it all..

    Thanks again for the thoughts everyone..

  16. #34

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    Katanya he is better of at home, thats where he will be happiest. I hope that he feels better real soon and that the horrible bugs stay away from now on. Big Hugs!

  17. #35
    katanya Guest

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    Thanks Lara yes home is the best place for him..

    Well his temps are finally down, he is vomiting up mucus today but as awful as that sounds he is actually at the recovery part now..lets just hope he can get rid of the crackles and cough on his own without Antibiotics..

    No sleep study now until his chest clears for awhile...they actually said we could borrow an oximeter instead of coming up to stay in brisbane..woohoo..means our lives can continue as normal without going up there..

  18. #36

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    ... yay for some good news (oximeter) amongst the grey.

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