Hi Kartier,
Sophie too is in the Rhino - she's been in it for nearly 7 months now. At first it was very restrictive - but over time the brace becomes very flexible and molds to their movement. The first week for us was a shocker with Sophie waking every half hour - now she won't sleep if she doesn't have the brace on! E.g. if she falls asleep in the car on the way home and I go to put her in the cot - she won't go back to sleep until I put the brace on her! It's become a bit of a security blanket (which worries me when she'll eventually have the brace off)
I'm sorry to hear that you have another 6mths with the brace. I always get my hopes up when we have our Orth. Surg. visit only to come out of the surgery nearly in tears. My last visit was on Sophie's 1st birthday and I was so hoping that he would tell us they we could be rid of the brace and give her the gift of freedom & 100% health for her birthday! You can imagine my disappointment when he said see you in 4 mths the brace is to remain on same as usual - so I know what you mean about Christmas! It'll all be over sooner than you know. Actually I really don't think much about Sophie being in the brace anymore - it's just part of our everyday routine. She too doesn't seem bothered by it. She scoots around on her bum, rolls over, pulls herself up - whilst she has the brace on. Actually the OS said he wouldn't be surprised if next time we come in she'll be walking in it. It's only a month til our visit and I don't see that happening - but it's good to know they are capable of doing anything that the other kids are doing! They're such little champions our kids. BTW - great idea about the cloth rather than having full length pants/leggins. I'll give that a go if it gets too hot - thankfully we're in Melbourne. Thanks. Hugs to you.
Bridee - that's fantastic news about Georgie. Congrats.
Anyway, I'm off to bed now. Chat soon. Susan xxx




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