Hip Dysplaysia Support Group

[crosswig]

Mummy Naomi,

as a new member myself welcome to the forum. I'm sorry to hear about your little one but glad to know that you have made your way here. Reading back over the posts there are a lot of very useful tips. A while back there was a consolidated list of questions to ask at the ultrasound so you have a better idea of your situation. Another good tip was - if possible - take someone along to the early appointments so that together you have a better chance of remembering important information.

Best of luck for your next appointments and hopefully all will be well. If not, remember there is a wealth of experience and support here for you. The members will have at least experienced some of what you are feeling right now.

Best wishes and fingers crossed for you,

Crosswig

[nicoli]

Crosswig - I would definitely ask again for a certificate. If your work is prepared to cover you with sick leave that's all that matters. Just let the paed know that. You shouldn't have to use up your other leave.

Naomi - welcome to the forum. Good luck with everything. You'll just have to wait to see the outcome of the test before worrying too much. The treatment will depends on the severity of the problem. Our daughter was in a pavlik harness at 3.5 months and then a dennis brown brace at 6 months so you just never know. I know what you mean about wanting to run away and hide. I felt like that at first too. I was so worried about how it would impact on my daughters development and temperament. I'm sure deep down you know that the problem needs to be fixed and as you will see on here - even if your bub's development is delayed due to treatment, they will back on track in now time. Let us know how you go with your appointments in the coming weeks.

Nicole

[MummyNaomi]

Thanks for your support Ladies!

We have our ultra sound booked for tomorrow morning then back to the paed next wed, then onto the orthopedic surgeon from there - I think the wait will do my head in but there is not much we can do about it. Nicole you are spot on, my biggest worry is how it will impact Baileys development, he already has gross motor skill developmental delays eg he cant lift his head or prop himself up from tummy time position among other things and is almost 6 months so this is just another hurdle to overcome and will set him back even further potentially

Ahhh, this parenthood gig is so worrying

[Miss.September]

Hi everyone!

I just thought I'd write a progress report because I'm excited, and for everyone out there who are just beginning this journey, please don't despair too much - my DD, while out of the brace, ROLLED OVER!!!!!

For anyone going through this you can understand what an achivement this is. She wasn't even three months when the first brace went on, then into surgery and a spica and now into a rhino cruiser brace, only coming off for two hours each day. I am so proud of her determination to do this and I know that once this brace is off for good there will be no looking back.

Hang in there everyone, you're not alone, and there IS light at the end of the tunnel.

Corelly

[crosswig]

Corelly,

You must be so proud! I've very glad to hear of your little ones progress . It does give me heart to hear about such progress and to be reminded that there is light at the end of the tunnel.

Crosswig

[MummyNaomi]

Hi Guys,

I took Bailey for his ultrasound today, and although the sonographer was not telling me anything (he was a bit of a twit), this is what the report says (I waited for the images so I could read it as we dont go back to the Paed until next Wednesday)

Hoping you guys can put it in laymans terms for me

The coverage on both sides is good, the right being measured at 77% and on the left being measured at 76% (I take this to be fantastic as a friend told me anything above 70% is considered in the normal range?) The right ALPHA angle was measured at 77 degrees and at the left 64 degrees. While the coverage is good, the acetubular margins remain quite rounded bilaterally. While this can be associated with immaturity, it is quite prominent given Bailey's current age. (FYI - Bailey is almost 6 months)

Its the last part that I dont understand - what does it mean? Hoping someone can shed some light

Thanks
Naomi
x

[bridee]

Naomi,

You are right the coverage is very good, someone else might know more and I really am not sure about this but I think where the reports talks about the acetubular margins means there is a gap between the hip socket and the ball of the femur. My DD's report says "there is mild rounding of both acetabular margins with app 50% femoral head coverage" and I know the radiographer talked about a gap.

In most cases the coverage is the important part and once the covereage is around 70% means kids start to come out of whatever brace they are in, so not really sure what it all means for you.

I know it will be a long wait till your Dr app. but just enjoy your baby without any brace/harness while you can.

Edit - Naomi I was just looking online at a definition of acetabular and found there is form of hip dysplasia called acetabular dysplasia perhaps this is what the issue with Bailey's hips