Hip Dysplaysia Support Group

[crosswig]

Corelly,

You must be so proud! I've very glad to hear of your little ones progress . It does give me heart to hear about such progress and to be reminded that there is light at the end of the tunnel.

Crosswig

[MummyNaomi]

Hi Guys,

I took Bailey for his ultrasound today, and although the sonographer was not telling me anything (he was a bit of a twit), this is what the report says (I waited for the images so I could read it as we dont go back to the Paed until next Wednesday)

Hoping you guys can put it in laymans terms for me

The coverage on both sides is good, the right being measured at 77% and on the left being measured at 76% (I take this to be fantastic as a friend told me anything above 70% is considered in the normal range?) The right ALPHA angle was measured at 77 degrees and at the left 64 degrees. While the coverage is good, the acetubular margins remain quite rounded bilaterally. While this can be associated with immaturity, it is quite prominent given Bailey's current age. (FYI - Bailey is almost 6 months)

Its the last part that I dont understand - what does it mean? Hoping someone can shed some light

Thanks
Naomi
x

[bridee]

Naomi,

You are right the coverage is very good, someone else might know more and I really am not sure about this but I think where the reports talks about the acetubular margins means there is a gap between the hip socket and the ball of the femur. My DD's report says "there is mild rounding of both acetabular margins with app 50% femoral head coverage" and I know the radiographer talked about a gap.

In most cases the coverage is the important part and once the covereage is around 70% means kids start to come out of whatever brace they are in, so not really sure what it all means for you.

I know it will be a long wait till your Dr app. but just enjoy your baby without any brace/harness while you can.

Edit - Naomi I was just looking online at a definition of acetabular and found there is form of hip dysplasia called acetabular dysplasia perhaps this is what the issue with Bailey's hips

[MummyNaomi]

Bridee - thanks so much for posting that info, I really appreciate it

[Jesska]

Hi all.
My name is Jess, and my daughter Lahni got diagnosed with hip hip dysplasia when she was 1 week and 4 days old. We got into her paeds when she was 2 weeks old, she has been in the pravlik harness ever since. ( she is nearly 5 weeks old now)
I was really upset when I first found out that she had hip dysplasia but now have come to terms with everything. And her paeds is fantastic... we had our check up yesterday and he was very happy with her progress... he said her hips are in the socket and are stable! She also has another brace on, Im not sure what it is called but it goes over her nappy?
She has another appointment in 2 weeks, and then we'll have our ultrasound to see how everything is going. Its so good to find a group to talk about this sort of stuff with

[bridee]

Jesska - welcome. Pleased to hear Lahni is doing well, since it was picked up really early she will be out of the brace really quickly.

DD2 came out of her DB bar today, well out of it during the day and in it for night times for the next month then out completely. She was only in it 6 weeks - she went from 50% coverage to 80% coverage in 6 weeks which is just fantastic.

[MummyNaomi]

Bridee - great news that DD is close to giving up her brace soon!!

Jesska - congrats on the birth of your DD, sorry to hear about her dysplasia, but great that it was picked up early

Well re my previous posts - Today we saw the paed and he sent us straight over to see the ortho surgeon. Overall we have pretty good news. The surgeon said that Baileys right hip is 'immature', so not fully developed as it should be at this point, hence the acetubular angle comments by the sonographer. So in a nutshell the surgeon said that when taking into account Baileys arrival at 36 weeks gestation, his smallness etc, his development is more like a 4 months old from a bone growth/developmental perspective (he's actually 6 months old this friday). The surgeon is happy to monitor the growth for the next month, and then make a further decision on treatment (if needed). We need to xray/scan Bailey again in 4 weeks and if there is no change then he will have to wear a brace for approx 6 months, (Dennis Brown bar) but we would be able to take it off for baths, nappy changes and play etc - so wearing it about 15hrs per day. However he said that waiting a month won’t have any impact on Baileys development as his hips have excellent coverage, and with any luck the issue with the angle of the right hip will take care of itself with his normal growth in the next month. He ruled out surgery too which was a big relief. So for now we feel pretty good about things, we know exactly what’s going to happen if anything, and both the paed and ortho were fantastic and carefully explained things and answered our questions. I know I'll be anxious again next month when we go back but for now I am pretty happy with the outcome, so much better than what the worst case scenario could have been. Obviously I dont want him to have to wear the brace, but understanding exactly whats going on is a major step forward

Naomi