thread: so confused about Aspergers

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  1. #1
    Registered User

    Dec 2007
    Adelaide, SA
    896

    Thanks Ladies once again..
    Hamish is a loving child and always gives me the biggest hugs, but it always on his terms, you cannot go up to him and just hug him, he does not like others initiating the contact with him at all.. He is very bright and is doing very well at school academically. From a very young age he knew all his colours, shapes and numbers.
    As a toddler his cars always had to be in a line and he became upset if they were not. He has relaxed on this now. I recall buying him a thomas the tank top and he refused to wear it as one of the numbers on the trains was not correct. By three he knew all the trains names, colours and numbers and could tell you what they were if you asked.
    He was diagnosed with hyper sensitivity at around 8 months as i was concerned about the way he flung his arms backwards as a baby. He no longer does this but still does not like the toilet flushing the bath running or other loud noises, although he can make some himself
    He is still not keen on shoes and socks and takes forever to put them on as they never fell right. He hates the tiled floor as it is too cold and he will refuse to walk on it bare foot

    As i sit here writing this i know in my heart and head that my little boy needs some help... He is and will always be my little man and a loving boy ...

  2. #2
    Lucy in the sky with diamonds.

    Jan 2005
    Funky Town, Vic
    7,070

    Awww, on the face of it, he looks like he has some of those superkid traits

    If you can, look for a book titled "Not even wrong", I read it when trying to find answers about DS, and by the end of it if he was diagnosed on the spectrum I would have felt GOOD about it.

    And come hang out in the chatter threads in here - it helped me HEAPS!

    xoxoxo

  3. #3
    Registered User

    Feb 2006
    AUSTRALIA
    1,263

    You are defaintely not letting your little man down. You are a caring mother who is doing her very best.

    Ive read some of your posts before and he does sound like a little boy I used to work with who had aspergers. He was diagnosed only at about 7 and half. Yet they were always saying something is not right here and getting in loads of trouble at school. This little boy was the most loving boy and very social, hence why he didnt fit all the tick boxes. I think there are some similar traits but aspergers children can be different in their own ways.

    There are places like Asperger Services Australia which if a member, can allow you access to loads of resources. Although from memory there was a free forum as well with a parent and carer section.

    As your from SA, have you contacted Autisum SA? The school should have done a referral for him BUT the school system (it its public) is very back logged with a lack of services.

    Feel free to PM me if you dont want to make this public info.

  4. #4
    Registered User

    Dec 2007
    Adelaide, SA
    896

    Hi he goes to a private school.
    I have a meeting on Thursday with the coordinator of the junior primary. Hoping she will get the school onto this as well for him. His teacher dismissed it and said to me oh do you really want him labelled and then said the school does nothing about it anyway but she is a whole other issue

  5. #5
    Lucy in the sky with diamonds.

    Jan 2005
    Funky Town, Vic
    7,070

    Oh she SUCKS! It's not about labelling, it's about UNDERSTANDING. Grrrrrr

  6. #6
    paradise lost Guest

    It's funny isn't it, how many misunderstandings there are about autism considering how much it's been in the news and so on recently! I know LOTS of autistic people who hug, many who are able to maintain great eye contact, just like any other condition the INDIVIDUALS are all different. My friend's wee boy is very cuddly and you can walk up and hug him, but my own DD not so much, she will hug eagerly if asked first but wriggles away and complains if she doesn't get a request/warning. And sometimes she'd much rather high-five than cuddle. It makes those cuddly moments that much more special

    My DD also has noise sensitivity, which is improving in some areas (can just about stand the hoover without screaming now) but worsening in others (the SIGHT of a hand-dryer sends her running from public loos before she's done a wee). She doesn't like pants and spends as much time as possible (including in public, which is getting tougher since it's November in Scotland and she is tall and looks about 5 rather than 3) wih her bum out...

    The teacher sounds like a piece of work! You'd think she'd be more than happy to help such an academically able student in any way she could! Lulu's right, understanding makes a huge difference. I would say the one thing that has set me up to feel so little concern about how DD is is my previous understanding. I never think "why is she acting like this?" because i know why, and it's usually within the realms of "normal to me" too. The major issue we have right now is that she is VERY sensitive to other children screaming, and he wee autistic friend screams when he is distressed. She hand-flaps and rocks but doesn't scream, unless he screams, then his mum and i hug our respective screeching kids and just look at one another like "oh my god, not again!" lol.

    Bx

  7. #7
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    My DD1 has high functioning autism. She hugs now, she avoids eye contact with people she doesn't know, and sometimes with those that do. Her autism affects her sensory integration and her emotional regulation. Matilda has lower communication, but is able to communicate with us well. She loves school but doesn't interact socially very well, she doesn't understand some of the imaginative play and prefers to follow a script.

    I think as a Mum of an Autistic, I want to provide her the best opportunities in life. I want her to not get so frustrated when the world doesn't align the way she wants it too. I want to help her understand that and help her have tools in order to function.

    I was definately anti-label for a long time, but I decided to let myself go, and get her the tools and support SHE needs in order to have a less stressful time in life. YKWIM? This isn't about having a label (although it is helpful for family and friends understandings.... and to chuck it at the horrible people in the shops who have to comment on her behaviour) its about getting access to heaps of resources that help them deal with sensory issues and psychological issues that come up living in a world within a world.

    I wish you well on your journey, come and join us in the chatter thread and hopefully we can help you in sharing our journeys.