Deb.... I'm struggling to find the right words to convey what I'm thinking but I'll try...
I guess when you have those kind of tests, even if you know *something* is up, you hope at least to get a name, a prognosis, a treatment plan or even just an idea of what you can expect. And yet you got none of those things. Just an even bigger mystery and confirmation that Immy is even more of a special little soul than you knew.
Challenging is an understatement. Possibly the understatement of the decade. Expectations give you a guide, an idea, a way to orient yourself, a sense of what's possible. They also create a limitation, by giving you a sense of what's impossible. So in a sense while you can only go deeper into the mystery, you are not constrained by a sense of what Immy can and can't achieve. Everything is open to her. Your path together will truly be one of a kind. I really feel you have been chosen for this. I can't think of a better person to take a little girl by the hand and lead her safely into the unknown.
Many hugs, prayers and thoughts for you xxx