i am in awe of how amazing you are..
you inspire me so much, not just from what you are doing for you fabulous daughter, but just your outlook on life and your positivity.
i wish i had 1/1oth of the positiveness you have..

you will guide immy through everything with grace and love, and to be honest that is the most special thing you can do for anyone and it is something you excell at.

yes you have been given a diagnosis which is rare and with very little known about it, but you will face each new hurdle with love and you will be positive towards it all so immy will never have negativity surrounding her and her condition she will never feel different and never feel abnormal, because to you she is special in everyway..
and to all of us she is special and no different to any other child, she is herself and you have always inspired me to believe that everyone is equal as we all have the same begining we just walk down different paths..