SuzL, I just want to jump in and give you a great big hug! And I feel like I should apologise in advance for potentially overloading you with information too soon!

PCOS is not the end of the world. And on the plus side, you have answers before you've even started TTC, so you're a huge step forward on a lot of other people. I found out really early in the TTC scheme of things that I had PCOS, and found out the hard way that seeing the right specialist at first is really, really important. My FS is great, but you probably don't want to go to that point straight away, particularly if you are not TTC yet.

Other things I learned the hard way - even though my PCOS appeared mild- I don't have many of the symptoms - not overweight, not hairy, no acne, etc, etc, my first lot of hormone tests were fairly normal... but the true extent of mine remained hidden for a while as I didn't have the proper testing done first off.

PCOS is caused by insulin resistance, having too much insulin in your body makes everything else not work properly, so it's important to manage things so that your body isn't constantly flooded with insulin. My levels of insulin were about 5 times higher than in a normal person, so I'm a pretty extreme case, and the reason we are doing IVF soon is because of combined issues with my DH, not just the PCOS, so don't panic on that account!

I have typed up some diet information that my FS gave me to pass on to some of the other girls with PCOS, I can send that on to you as well if you are interested. It seemed extreme at first, but since starting I'm feeling better than I have in a long time, and have lost 2kg in a week and a half. I was already in a healthy weight range (top end of it), and haven't really been working too hard at it, but it does show that it works!

Hopefully I haven't overloaded you too much, or frightened you any more than you currently are (this was meant to do the opposite!). Contact me any time - I know this is a scary place to find yourself, but it will be ok! Trust me!

BW