DS is bad this week :/ 4-5 changes of pants a day for the past few days. 2-3 rolls of toilet paper + wipes in 24 hours. Only 2 bath/showers thanks to the wipes, but they won't last long.
This has been ongoing for over 18 months now. I was naive & thought it was all getting better & stopped the meds.
So tell me, why movicol? Is there nothing else that works well enough that might be easier to take?
At the moment, because of the compaction (he's never been this bad), I'm trying to get 4-6 adult doses into him a day. But they didn't give us flavoured ones this time... Not nearly as easy. We did have a win with only 1 sachet & a glass of strong choc milk... But milk isn't really going to help the situation.
Is there anything else? Maybe in pill form? Is there a reason movicol in particular is used?
I had to keep him home from a boys day out at the burnouts today because of it & I'm really feeling the unfairness of it all. He's missing out on life. And I'm struggling to afford the toilet paper, wipes, and hot water to keep up.
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