i suffer from severe abdo adhesions caused by surgery....mine is all through my abdo....the doctor wont operate because its risky and i will more than likely end up in a worse state than iam now.
the pain is crippling 24/7 and im on morphine for the pain.
Gosh that is dreadful. So far the people in the news who had surgery under the same surgeon as me have gone for surgery to remove sheets of scarring, but nowhere does it mention if it helped them at all.
My pain is not that bad - if things get dire I can eat just plain white rice for 2 or 3 days & it starts to settle down. It is never completely gone, but it can be worse or better.
Thanks for the answer, I was just wondering if there was anyone else out there - all these years I thought it was just me & now it is in the news, in NZ at least.
Hi there, I have just stumbled upon this thread when looking up Hanifa Koya. I had three surgeries with Hanifa, one of which the spray gel was used (all endorsed by my insurance company as being a preventative measure for scaring). Like you I also had extreme pain after the operation and wondered if it was taking a long time to heal - since it became so severe I once again underwent surgery where Hanifa found huge amounts of scarring where she had sprayed the gel spray and many of my internal organs were glued together. She was able to "un-glue" everything and remove most of the scarring and I definately felt better for it afterwards. I have since had a hysterectomy (unrelated) so can not say if it was a lasting result. However was horrified when my family found the same article and learn't that the spray gel had been untested on humans! Hope this helps
No I didn't have gel I dont think Im in the uk but I did speak to my surgical team a few weeks ago and their view hasnt changed. Wont operate due to the risk of leaving me with a stoma again, create more adhesions or kill me. Bit of a hard thing to take but Iv been ill for over 5 years now. How are you? What operations have you had?? xxx
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