Gosh that is dreadful. So far the people in the news who had surgery under the same surgeon as me have gone for surgery to remove sheets of scarring, but nowhere does it mention if it helped them at all.
My pain is not that bad - if things get dire I can eat just plain white rice for 2 or 3 days & it starts to settle down. It is never completely gone, but it can be worse or better.
Thanks for the answer, I was just wondering if there was anyone else out there - all these years I thought it was just me & now it is in the news, in NZ at least.
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