thread: IVF sceptic? Looking to hear from others with similar experiences.

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  1. #1
    Registered User

    Sep 2009
    4

    IVF sceptic? Looking to hear from others with similar experiences.

    Dear all,

    Here is a overview of where things stand for my wife and I and given this is a post on a topic I haven?t seen before on this forum, I hope that it?s allowed and can be responded to by other members who have experienced multiple failed OR successful IVF procedures; the outcome is irrelevant.

    My question is unusual and I would ask only people respond to it who agree with my proposition because they have experienced similar treatment I?m about to describe. I think it is pointless to be responded to from people who have been happy with what they?ve received from their IVF providers.

    If you were, good luck, it doesn?t necessarily mean that your doctor was any good; it could just means you were happy with them.

    So, here we go ?..

    My wife has undertaken 4 stimulated cycles; 2 each at 2 large Melbourne clinics. My question is unrelated to whether we?ve been successful or not, it?s completely to do with how these businesses have treated us as individuals regarding:

    i. standards of communication
    ii. as patients in terms of medical protocols she?s been subjected to
    iii. the demeanour and mindset of the staff.

    I stress the word ?business? as I contend that this is what they primarily are ? businesses, with their key concern being to increase earnings for shareholders and if you think I?m wrong, look at the acquisitions of IVF clinics in the last 5 years. They are being bought by utterly unrelated, non-medical businesses for the simple reason that they consistently post excellent returns and their annual growth is impressive.

    I have very often read forum postings here from women where a they basically say: ?I love my doctor, they are really nice?. Or they are ?Cool but professional? or ?They have a picture of their kids on their desk?.

    I think these observations are pointless, whether the doctor is really nice or not is utterly irrelevant and in fact I believe that the ?nicer? they are can act as dangerous diversion from my main contention which is this.

    Ask yourself ??.

    At any time, during any of your procedures, did your doctor state the anything like the following in plain, unequivocal English?

    ? ?You are here because you can not have a child.

    ? There IS a reason/s why this not happening. Not ?Luck of the draw? or ?Some women have difficulties? but an absolute, tangible, biological reason you can not have a baby.

    ? Therefore, as your doctor, my promise to you is that I will find out what this reason/s is, tell you what the treatments are and then we will together, follow the steps that I believe are best suited to correcting this problem in your particular case.

    ? And when I find the reason and I will, and if it is not able to be corrected, I will tell you that too.

    For readers of this post, whether you gave birth after your first treatment or are still at it on your tenth, ask yourself: Has your doctor ever told you anything even vaguely resembling this?

    Or have they instead been completely incurious regarding the crucial starting point of infertility, which is ?Why??

    Why can?t you have a child?

    If someone can?t even identify the problem, then if you have a baby after repeated procedures, it is attributable to one thing only.
    And that?s luck.

    Consider; your car has broken down. You take it to the mechanic and you say it?s not working and naturally the first thing you want is to know why. Is it the clutch? Is it the electrics?

    ?Mr Mechanic, it was running yesterday and now it is not. The first thing I want to know is why it does not work and after we know that, then we can fix the problem?.

    Naturally you haven?t heard anything other than: ?Of course, I will find the fault first?. No-one hears otherwise, it just doesn?t happen.

    Imagine however his response is:

    ?No, this garage doesn?t do analysis; we do not recognise it as a principle. What we do is put a new alternator in your vehicle and if that does not work, we will then keep putting another 6 new alternators in.

    And only then and if you kick and scream will we put in a new starter motor and see if that works. We will not analyse the cause of the problem, not tell you what it is, not fix it or tell you if it can not be fixed, we will just do the same thing over and over and it may one day run again. Maybe?.

    No car repairer would ever say this, no plumber, absolutely no-one we deal with on a practical level where there is something that is not working, would ever say this.

    But in my experience, IVF doctors do.

    So, here?s my contention:

    In Australia, IVF doctors and their highly lucrative practices are fuelled by 2 things; a huge level of taxpayer funding and desperation on the part of infertile couples.

    I suggest that these doctors are on a massive personal wealth gravy-train that is effectively incapable of derailment from funding cutbacks and their behaviour basically immune from public or government scrutiny as they have the twin excuses of: ?This field is too scientific for the layman to comprehend?.

    And: ?How dare anyone question our methods, every woman has the right to be a mother?.

    Quite simply, I believe that many IVF specialists are running little more than a scam that Bernie Madoff would be proud of.

    If you don?t know who he is, look up his name on the net, he?s the greatest Ponzi scam creator in history who took the best and brightest for US$60B. Currently he is into month 4 of a 150 year sentence only because one person said:

    ?This man?s business is endemically rotten? ?? and it was.

    So that?s my opinion based solely on what I?ve experienced and researched; that a very significant proportion of the IVF sector in this country that is endemically rotten, is motivated disproportionally by greed, is protected from scrutiny via the threat that the science is beyond the layman, is fuelled by taxpayer largesse and is underpinned by infertile couples desire to have children.

    If airlines were run in the same outrageous and deplorable manner that we as a couple have experienced, 2 in 3 planes would crash, as these are broadly the ?success rates? that IVF clinics achieve. And the IVF clinics don?t even have to state why their figures are so woeful.

    Only: ?It didn?t work for you?.

    To conclude, what I would like to read are comments from those who have suffered similarly to us, the key reason I believe begins with the fundamental point that their doctor never asked which is: ?Why? Why can?t you have a baby??

    If that is not asked at the very start, then the problem can not be solved and what they do instead is ?Throw spaghetti at the wall?, as they know that enough of it will stick, an approach that is outrageous, immoral and also tantamount to taxpayer fraud.

    They send women back and back for more and more procedures, knowing that for some of them it will work and that?s where they get their statistics from, the statistical third which will give birth to a child.

    But for the rest, it?s ?We?ll bleed them financially until they?re tapped out, their relationship fails or they just give up and go away and then it?s ?. Next patient please?.

    I?d like to read others views that have experienced this callous and unprofessional treatment and also if it?s permitted by the forum?s administrators, I?d like to be Private Messaged to meet others in Melbourne who have suffered from this behaviour, to hear their perspectives.

    And if anyone thinks I?m ?crazy?, consider this, if the population of United States is 15 times larger that Australia which it is, how is it that Australia has 10 times, I repeat, 10 times, the number of IVF procedures carried out each year?

    And please, don?t tell me that it?s just the price difference.

  2. #2
    Registered User

    Sep 2009
    4

    Just a follow-up to what I wrote above, here is my email address should anyone wish to get in touch:

    communicationvoid at gmail dot com

  3. #3
    Registered User

    Mar 2005
    lulla by the ocean
    93

    I think comparing the human body to a motor is perhaps not an accurate way of looking at things.
    The human body is incredibly complex and there can be so many reasons pregnancy doesn't eventuate - unlike a car which has limited causes for a motor breaking down.

    I'm sorry you've had such a horrible time with the clinics you've been to. IVF is never good. And sometimes I'm not sure if the staff of those clinics know they can have such an impact on people - even down to the receptionists.

    I agree with you that IVF is certainly a money making business. But I don't think that is all they are. And I don't think a clinic would compromise your chances of success in order to have you come back for a repeat procedures.

    I hope you find success in your journey and I'm sorry it has bought you frustration.

  4. #4
    Registered User

    Dec 2005
    6,706

    I get the feeling that your dissatisfaction with your treatment during IVF comes from your pre-conceived notions and expectations. The human body is much, much more complex than a motor vehicle and comparing it to one is something I find somewhat insulting. Perhaps it is because I have dealt with chronic illness for about ten years now and understand a little bit more about how the medical world works, it's certainly not a world of absolutes. I've had an arthritis condition for many years now, and still nobody can tell me what it is - they can tell me that it's there (so I know I'm not imagining it!), but not give a name to it. It can be similar for infertility. The reasons can be many and varied - some they have names for, some they don't have names for just yet. They can give a name to my reason for infertility, they can give a name to my husband's reason for infertility, but just like my arthritis, they can't give a name to the reason I keep miscarrying. They can only look at the symptoms and try to fix them.

    As for the reason there is more IVF done here in Australia than there is in the US - I would honestly have to say that the price difference DOES come into it. With government subsidies here, IVF is something accessible by many. In the US, it's accessibly to only a few. Adoption processes in the US are also much simpler, straightforward and quicker than here in Australia, so for a lot of people there's a much more attractive alternative to IVF with a guaranteed baby at the end of it. Adoption in Australia is just not that accessible, nor quick, nor simple - be it local adoption or inter-country adoption.

    I'm sorry you've had such a bad experience with your IVF doctors. But I can honestly say that they are NOT all like that. I will admit that you do often have to push for more tests or more treatment to figure things out, but from what I have observed, the IVF doctors are really only willing to do the same thing time after time with no changes if the patient is content to let them.

    BW
    Last edited by Lenny; September 10th, 2009 at 07:59 AM. : Removing Ticker

  5. #5
    Registered User

    Mar 2009
    Australia
    159

    Hi,

    I hear the anger in your voice and everyone has the right to get angry.

    We know the reason for us not getting pregnant. Dh sperm not viable. FS has told us he would try his best to get us pregnant but that there are no gaurentees just like normal pregancy. I accept that.

    Im a little upset they are treating it as a business. I have found one clinic that doesn't run it for profit. I like that.

    I hope you seek a counsellor that may be able to help you with your anger its not good to bottle it up inside.

    Redlady

  6. #6
    Random Act of Kindness Recipient
    Add Baby Dreamtime on Facebook

    Jul 2008
    Gold Coast
    692

    In answer to your question 'did my FS ever ask the question 'why can't I have a child'' it is uneqivocably YES, and I thank her every day for being willing to push the envelop with me and my circumstances and for looking at me as a person and not just a number.

    Thank you Dr Julie Lindstrom .

    I don't think you can lump all FSs in the same boat. My FS took me on after repeated failures at another clinic, I was a great challenge and certainly not good for her stats.

    I wish you all the best with which ever direction you choose to go forward with.
    Last edited by Lenny; September 7th, 2009 at 07:58 PM. : Removing ticker

  7. #7
    Registered User

    Dec 2006
    In my own private paradise
    15,272

    My question is unusual and I would ask only people respond to it who agree with my proposition because they have experienced similar treatment I?m about to describe. I think it is pointless to be responded to from people who have been happy with what they?ve received from their IVF providers.
    why ask for posts from people who ONLY agree with your stand? are you seekin intelligent debate and experience? or simply validation for your anger at the situation in which you find yourself?




    i wont say you are wrong in being angry - no doubt you are very frustrated - but to try simplifying and comparing the human body to the motor of a car is just ridiculous. and insulting to EVERY medical professional/scientist (no matter their field) - i'm sure they appreciate having their years of study and research and experience compared to an apprenticeship! have you ever engaged in even the most basic studies of human anatomy and physiology? it's not a simple case of looking at the human body and one size fits all. lets face it, the reproductive functions of the human body are nothing like the functions of a V6!

    to answer your questions:

    At any time, during any of your procedures, did your doctor state the anything like the following in plain, unequivocal English?

    ? ?You are here because you can not have a child. YES

    ? There IS a reason/s why this not happening. Not ?Luck of the draw? or ?Some women have difficulties? but an absolute, tangible, biological reason you can not have a baby. YES

    ? Therefore, as your doctor, my promise to you is that I will find out what this reason/s is, tell you what the treatments are and then we will together, follow the steps that I believe are best suited to correcting this problem in your particular case. YES

    ? And when I find the reason and I will, and if it is not able to be corrected, I will tell you that too. YES

    For readers of this post, whether you gave birth after your first treatment or are still at it on your tenth, ask yourself: Has your doctor ever told you anything even vaguely resembling this? YES YES YES

    Or have they instead been completely incurious regarding the crucial starting point of infertility, which is ?Why?? NO - both myself and my husband had testing following initial appt. treatment wasnt discussed until second appt when those test results were available. this was on top of having test results from both gp and gyne before even getting to FS

    Why can?t you have a child? we were told what was preventing me getting pregnant, causing miscarriages when i did get pregnant, and we worked together to find the combination of treatments that got us a baby

    If someone can?t even identify the problem, then if you have a baby after repeated procedures, it is attributable to one thing only. unexplained infertlity is CRAP - there is no other way to put it. it's hard on everyone involved. you simply cant pinpoint the reason - is it metabolic? is it immune? are the embryo's simply not strong enough?

    And that?s luck. conception has never been an exact science and it wont be in our lifetime (or many beyond ours). too many aspects have to align perfectly and some of that is simply beyond our control - you can have a perfect quality embryo, a healthy looking lining - and, for reasons beyond scientific explanation, it wont take, while a weak looking embryo will. go figure. so yes, luck plays a huge part




    To conclude, what I would like to read are comments from those who have suffered similarly to us, the key reason I believe begins with the fundamental point that their doctor never asked which is: ?Why? Why can?t you have a baby??
    if, as you state, this is a business (and really, what in todays society isn't?), have you, as the consumer, asked these questions yourself. have you investigated beyond the infotmation you were given by your cklinic, there are aspects which MAY contribute to infertility that are not routinrly tested for due to expense and the fact they are unlikely but poosible (NK testing etc) - they are only performed by a few doctors within Au


    I?d like to read others views that have experienced this callous and unprofessional treatment and also if it?s permitted by the forum?s administrators, I?d like to be Private Messaged to meet others in Melbourne who have suffered from this behaviour, to hear their perspectives.
    there are much more constructive reasons for catching up with other couples with fertility issues... support, understanding - why go out of your way to try and inflame people against the system so many of us need? but hey, whatever floats your boat

    And if anyone thinks I?m ?crazy?, consider this, if the population of United States is 15 times larger that Australia which it is, how is it that Australia has 10 times, I repeat, 10 times, the number of IVF procedures carried out each year?

    And please, don?t tell me that it?s just the price difference.
    ditto BW's statement - look at octomum - she put back all her embryos. to the potential harm of herself and her baby's. why? cos she couldnt afford additional treatment or storage fees. ivf in the statesis BIG business, isnt subsidised and costs a fortune. you either have a high income or you mortgage everything t afford treatment. adoption or surrogacy are cheaper options


    FWIW - i underwent treatment through one of the melbourne clinics. i was stimmed 8 times. i lost 5 babies. i forked over a crap load of money. i knew i was dealing with a business and i treated it as such. i was the consumer and i asked every question that came to mind and then some. i wasnt always happy with my treatment - how can you be when things dont work? - but i never felt i was in any way "just another source of income" for them