thread: IVF with very high FSH?

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  1. #1
    Registered User

    Jul 2009
    Sydney
    73

    a friend of mine sent me a link to this forum - High FSH and Premature Ovarian Failure - Fertile Thoughts

    there's a thread on High FSH positive outcomes which is inspiring

    xx

  2. #2
    Registered User

    Sep 2008
    Up the Duff
    376

    Thanks anyos, I'll have to check that out, it's always reassuring to see high fsh success stories
    Last edited by Dutchie80; September 17th, 2009 at 07:40 PM.

  3. #3
    Registered User

    Jan 2009
    Queensland
    102

    Hi All,

    Thought it was about time I sent an update.

    anyos - Thanks so much for that link. It definitely helped boost my 'hope' - that BFP's for high FSH'ers can and does happen. Thanks so much. I hope you're cycle is going well!

    Dutchie - I hope you are ok and the clouds are lifting for you. It takes time - but it does get easier.

    buliej - How are going? Any plans to cycle again with EPP?

    AFM, 7 weeks since D&C and AF finally arrived! Very light this time, but she's at least here. As long as there's no surprises I will be cycling again next month (I'm sitting this cycle out as per FS's recommendation). News from me is that, today I started on DHEA (FS finally prescribed it) which I am hoping will make the difference. I'm on 3x25mg tablets daily (75mg). Statistically, it takes 3-5 months to get maximum benefit from DHEA, but I'll continue cycling until that point - may as well get in as many as I can while the safety net's still in place.

    Can I say that I think it's great how you gals can email your FS's and FN's for info...I can barely get the Q's answered when I'm in there - let alone get an email address off mine.

  4. #4
    Registered User

    Jan 2009
    Queensland
    102

    anyos - Sorry about your cycle which I just read about on the other thread. I've been there. My first cycle had one follie at first stim scan (I was on 450 Gonal F) and then 2 more popped up at 2nd scan. On FS's recommendation though, I went to EPU and did ICSI on the two lonely eggs that were retrieved. Only one was good enough to transfer (that was the chem preg). I'll be praying for a natural miracle for you - seems like us high FSH'ers get a few of those, so it can happen. (I'm secretly hoping for one myself in my break! Oh! We can but dream!!)

  5. #5
    Registered User

    Sep 2008
    Up the Duff
    376

    Tigga- woooohoooo for starting the DHEA, I hope it makes all the difference for you and boosts your egg quality and quantity!

    I would seriously hound your FS/FN for their email, I think you have every right to have it to ask any questions you have as they arise. I was given my FS's by the nurses when I asked for it without any real dramas and I sent off an email tues just gone and had a reply within an hour- I was very impressed! Now if I could just get them to come round to the idea of trying the A/ACP with EPP with me!
    When I heard back from FS regarding my latest cycle, I did ask about this protocol and they said they would have to look it up but basically that studies have shown no real improvement in situations like mine I guess I'll have to work on them some more and get my butt into gear with this email- I've had a lot on recently.

  6. #6
    Registered User

    Jul 2009
    Sydney
    73

    good morning lovely ladies,

    Tigga, thank you for your msg, we agonised over the decision not to go to EPU but in hindsight it was the best call. I thinks its great that you're taking a month off to get your cycle back on track, I found it made a huge difference for me (just no eggs!). I've also been on DHEA for 3 months roughly but just on 50mg a day. Re contacting your FS, push, push, push!!! I've discovered (the hard way!) that you have to push for things. You should have 24/7 access to someone at the clinic and when things don't go as planned they should be in contact to answer questions/explain options etc. I loved that forum also, bring on the 'natural' pregnancies!!!

    Dutchie, how are you going lovey? Did you end up having any pregnyl for luteal support? Am so glad you've got direct access to your FS. My FS said the same thing about EPP last time but said she'd consider it next time if we wanted. Perhaps you should say to your FS that you're not going to be doing many more rounds and want to try to alternative protocols?

    AFM, have had two doses of pregnyl, had a bt yestereday for progesterone/estrogen levels which were all fine. God, pregnyl hurts! Feeling nauseous but boobs not sore (a sure-fire sign for me) so I think its just the drugs. Next steps for us (depending on outcome of this cycle) are a month off in October and then cycling for the last time in November.

    xxx

  7. #7
    Registered User

    Sep 2008
    Up the Duff
    376

    Hi anyos- Yes I think I have to start being a bit more firm and really push for what I want. I'm going to send off an email re: lap and I think I will mention epp again aswell. Thanks

  8. #8
    Registered User

    Sep 2008
    Up the Duff
    376

    Hi anyos- Yes I think I have to start being a bit more firm and really push for what I want. I'm going to send off an email re: lap and I think I will mention epp again aswell. Thanks
    As I said in other thread, I have my fingers tightly crossed for you and hope that you won't need another cycle in Nov because you'll be pregnant.

    AFM- I don't know if I'm in dream land but I'm 10 DPO today and I've been having WAAAY more cramping than what I usually do, my BBs are sore to touch and I've been peeing a lot lately too, probably very wishful thinking but we'll know soon enough I suppose.
    Last edited by Dutchie80; September 25th, 2009 at 12:42 PM.

  9. #9
    Registered User

    Jan 2009
    Queensland
    102

    Dutchie - I sure do hope there's a miracle on it's way to you!!

    For anyos too! For all of us!!